Happiest day of my life is 30.05.2008. when a litlle angel called Ema came to Earth. She gave us happiness and joy. At that time we didn't know that the disease we never heard before, would destroy our life.On 22.09.2008. we got the confirmation that our Ema have SMA type 1.
On 4.12.2008. our angel Ema left the Earth and flew back to Heaven.
We feel so lonely without her. Our life has only one purpose now and that is to inform everybody about SMA.