The Collaborative Chronic Care Network (C3N) Project is an innovation lab, where patients, clinicians and researchers work together as co-designers in a learning, social production system for health that aims to transform the system of chronic illness care. Working with ImproveCareNow, we are creating the first C3N for patients with IBD. By combining large data registries and making them accessible and interactive, the C3N Project drives action and innovation to create a more reliable and accountable care delivery system for children and their families dealing with chronic gastrointestinal diseases.