Vicki Whiting, a professor at Westminster College, co-authored a book with her son Kevin detailing their family's 18-month struggle to diagnose Kevin's life-threatening condition. When Kevin was 13, he began experiencing abdominal pain and loss of appetite but doctors were unable to properly diagnose him for over a year. Eventually diagnosed with Wilkes Syndrome, a rare genetic disorder, in Australia, Kevin received treatment and recovered. Whiting hopes their story helps others advocate for themselves and learn from her family's experience navigating the healthcare system.
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1. Vicki Whiting, Westminster College professor speaks on life-lessons learned
By JM Martin428 days ago836 views
A prominent member of the Sugar House community has chosen to share a life-changing experience in
the hopes that it will help people experiencing similar struggles.
Westminster College of Business Professor Vicki Whiting authored a book detailing challenges her
family experienced when her teenage son, Kevin, suffered for 18 months with an undiagnosed life-
threatening condition. The book chronicles their journey through the medical system, up to Kevins
recovery almost two years later.
Whiting said writing the book, which she and her son co-authored, was a healing experience because
telling their story has become a way to help others learn to be their own advocate while navigating the
healthcare system.
It was difficult to write, but now we are able to make a difference in a way that is meaningful,
Whiting said.
When Kevin was only 13-years old, he began experiencing early symptoms that included abdominal
pain and loss of appetite.
For more than a year, Kevin endured pain so intense he couldnt attend school or function in his
everyday activities. Because he couldnt eat, Kevin began to lose weight rapidly and had to be
hospitalized at least three times.
Although Whiting could see that her son was in chronic pain, the doctors were unable to properly
diagnose Kevin to begin an effective treatment.
Eventually, Kevins weigh plummeted to only 63 pounds. His doctors diagnosed him with anorexia
nervosa and prescribed anti-depressants, but the treatment only served to lead Kevin to feel suicidal.
Whiting said at that time, the family was willing to try anything to help Kevin get a diagnosis that
would solve the problem.
Its heartbreaking for a parent to watch [her son suffer], she said.
Whiting and her family began researching their options to help find an effective treatment for Kevin.
Martin, JM. "Vicki Whiting, Westminster College Professor Speaks on Life-lessons Learned."-
Sugar House Journal. Sugar House Journal, 02 Mar. 2011. Web. 22 Mar. 2013.
2. Eventually, that search led the family to doctors in Australia, where Kevin was diagnosed with Wilkes
Syndrome, a genetic condition that causes a major abdominal artery to press against the bowel.
After Kevin was properly diagnosed, he was able to return home and receive treatment at Primary
Childrens Medical Center.
Whiting said the long journey to help Kevin brought their family of four closer together. Kevins father,
Jeff, older brother Phil and younger sister, Katie all pulled together to support him during the process.
She said the familys experience also lead them to find ways to help health care providers adopt
practices that will lead to better care for patients.
Whiting said a message she and her son would like to share is that doctors need to listen to their
patients.
Luckily, I had a few good listeners on my side along the way, including my mom, my family and
friends and our family doctors. My mom wasnt afraid to speak up for me when doctors ignored what I
had to say, Kevin said.
The book Whiting and her son wrote, called In Pain We Trust: A Conversation Between Mother and
Son on the Journey from Sickness to Health, was released in November by Blooming Twig Books.
Whiting and Kevin are planning several appearances to speak about their experiences.
Kevin, now 17-years-old, is a healthy high school student looking forward to attending college next
fall.
He plans to study medicine and become a pediatric surgeon.
Martin, JM. "Vicki Whiting, Westminster College Professor Speaks on Life-lessons Learned."-
Sugar House Journal. Sugar House Journal, 02 Mar. 2011. Web. 22 Mar. 2013.