The document summarizes two new books by Utah writers that explore using words and writing to help cope with illness. The first book by Vicki and Kevin Whiting documents the mother and son's experience with the son suffering from an undiagnosed intestinal disorder for years. The second book by Susan Sample is a collection of poems about coping with family members' illnesses and using poetry in medical education. Both books show how writing can help people process and find meaning from illness experiences.
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1. Two new books by Utah writers explore words that heal
Hobbled by doctors who seemed unable to diagnose the rare intestinal disorder that wracked her 14-
year-old son's body with constant pain, Vicki Whiting never thought about documenting her
experience in a book.
When her son Kevin finally recovered, Whiting knew she had to write it all down. She also knew she
should include accounts from her son, who suffered years of pain so intense he ripped up phone books
for distraction.
"When your family survives something like that, you just want to move past it as quickly as possible,"
said Whiting, a Westminster College business professor. "It would have been a very different book had
we waited."
Published last month, the mother-son book, In Pain We Trust : A Conversation Between Mother and
Son on the Journey from Sickness to Health, has since been adopted by Westminster College's nursing
school as part of its curriculum. Nursing programs at universities nationwide have also expressed
interest in using the book to underline the need for "patient-centered care" in the nation's health-care
system.
Poet Susan Sample met the trials of sickness first-hand through family members, too her father is in
remission from his third type of cancer, her mother died in 2008 from lupus but also through years
of teaching verse.
Doctors, medical students and people confronting transplants and terminal conditions have all learned
from her published poetry, as well as her position as an associate in the division of medical ethics and
humanities at the University of Utah's School of Medicine.
Her poetic observations culminated this fall in the publication of Terrible Grace, collecting several
poems recognized with a first-place award for original writing in 2009 by the Utah Arts Council.
Sample dedicated the collection to the memory of her mother, Bette Jane Mooney Sample.
Where the Whitings offer a narrative survival guide for navigating the maze of obtaining an accurate
diagnosis and effective treatment, Sample's book charts the ways disease and mortality call people to
articulate their way through fear and pain and, hopefully, into grace and wisdom.
Fulton, Ben. "Two New Books by Utah Writers Explore Words That Heal." The Salt Lake City
Tribune. The Salt Lake City Tribune, 16 Dec. 2011. Web. 22 Mar. 2013.
2. "Poetry is beneficial in that it doesn't require an end," Sample said. "With poetry, we don't quite know
what the conclusion is. Instead, it enables us to capture peak moments to make meaning of. I think
that's why so many patients find it meaningful."
The books are very different, ranging from the Whitings' pragmatic, here's-what-must-be-done
narrative of a mother-son team, to the terse, eloquently jarring verse of Sample, yet both start from an
identical assumption. Illness demands a response and when all else fails, writing can make up the
difference.
Kevin, now 17, was cured by surgery that untangled an artery from his intestines that prevented him
from absorbing nutrients. Writing the book with his mother, he said, was "the opposite of therapeutic."
Instead, it was written to help other families struggling through ailments that often elude doctors,
leading patients to take the wheel from medical professionals until effective treatment is found.
Even so, the book reveals ways in which Kevin and his mother coped through years of misery and
uncertainty, from the summer of 2007 when his symptoms surfaced, to fall 2009 when his agony began
to subside. He gave his pain a name, "Burnie," and even an identity as something more akin to a
"horror show" as opposed to real life. "Imagining the pain as a person helped me bring myself away
from it," Kevin said.
In contrast, Sample views illness more through the lens of a diagnostician prescribing words as
treatment. She's spent 10 summers teaching poetry to teenagers who've survived organ transplants, in
addition to teaching courses on the rhetoric of health and medicine at the University of Utah.
People asking about her work often assume she counsels patients at their bedside in the hospital. Her
preferred environment by far is outside the hospital, where Sample said people undergoing treatment
feel more like individuals than patients.
"The biggest value writing provides is the opportunity to figure out who you are in terms of illness,"
Sample said. "When you're outside the hospital, you get to decide what those terms are."
The need to "figure out who you are" holds true for family members as well. "Lullaby," a poem
included in Terrible Grace, was written after Sample accompanied her father on a doctor's visit.
For Vicki Whiting, the ordeal of watching her child suffer taught her the importance of drawing those
Fulton, Ben. "Two New Books by Utah Writers Explore Words That Heal." The Salt Lake City
Tribune. The Salt Lake City Tribune, 16 Dec. 2011. Web. 22 Mar. 2013.
3. terms. Also, the realization that, like the origin of illness, the forces that drive people are never fully
known until investigated and described in words.
"Whatever we see in another person is just a small portion of what's revealed," Whiting said. "We all
have our stories."
bfulton@sltrib.com
Twitter:@Artsalt
In Pain We Trust: A Conversation Between Mother and Son on the Journey from Sickness to Health
By Vicki and Kevin Whiting
Publisher Blooming Twig Books
Pages 235
Price $18.95
Excerpt (by Kevin Whiting)
"A lot of the stuff that happened in the hospital that second visit kind of lives in my brain like a horror
movie. 但側 The climax of the horror movie would come when the hero is told maybe these tiny little
specks of grain in his intestines might be causing the problem. The evil doctor hooks the hero's feeding
tube up to a special cleanser and pumps the tubes full of some special liquid to 'clean out the pipes.'
Too soon the hero's body is so full of the liquid that the liquid is spurting out of his body everywhere,
like some crazy cartoon."
Terrible Grace
By Susan Sample
Publisher Finishing Line Press
Pages 23
Price $14
Excerpt from 'Lullaby' I dream of a needle boring into my back, searching for furrows in discs of bone.
Last week, my dad's blood drenched piles of gauze. Look away, the oncologist said, drawing marrow
Fulton, Ben. "Two New Books by Utah Writers Explore Words That Heal." The Salt Lake City
Tribune. The Salt Lake City Tribune, 16 Dec. 2011. Web. 22 Mar. 2013.
4. from his pelvic wing. He feels only pressure, no pain. Hurtsounds different: a knock after midnight
when winds moan 'round the door and joints unhinge. Now I bend into notes bruised as the winter sky.
Fulton, Ben. "Two New Books by Utah Writers Explore Words That Heal." The Salt Lake City
Tribune. The Salt Lake City Tribune, 16 Dec. 2011. Web. 22 Mar. 2013.