ºÝºÝߣ

Ide Hill

Administrator

My gorgeous boy Sam has been diagnosed with a rare genetic disorder called Alagille Syndrome. He has a heart condition and liver disease but faces every day with a toothy smile. I am proud to be his mum! I'm always hungry, I sing loudly when I think no-one is listening, I hate losing, I'm a bit of a geek, only one of my eyes works and I wish I was as brave as my amazing son, who astounds me by being the happiest smiley baby ever, despite having more reason than most to be a grump!