Getting post-diagnostic support right for people with dementia

Jul 10, 2012Download as ppt, pdf

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Henry Simmons, Chief Executive of Alzheimer Scotland. Presentation given at Alzheimer Scotland Conference: Creativity and dementia – policy and practice. June 2012, Glasgow.

Henry Simmons
Chief Executive
Alzheimer Scotland

The document summarizes the proceedings of a Members Advisory Forum on early diagnosis campaigns and dementia research in Scotland. It includes: 1) Welcome remarks and presentations on starting difficult conversations about memory issues and designing an early diagnosis campaign. 2) A discussion of barriers to diagnosis, recommendations for disseminating information through various channels and involving diverse communities. 3) Updates on Alzheimer Scotland's research activities including centers focused on scientific, clinical and policy research, and a brain tissue bank. 4) A question and answer session where members provide input on Alzheimer Scotland's research approach and priorities.

Workshop 3 quality & workforce developmentsAlzheimer Scotland

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The document announces a conference and awards ceremony for staff, members, and volunteers of an organization dedicated to helping people with dementia. The conference will address topics like quality improvement, best practices, personalization, workforce development through learning and leadership programs, and health and safety policies and risk management. It introduces the directors and staff of the organization's Quality and Workforce Development department who are responsible for these initiatives.

Plenary presentation a year in the life of communications & marketingAlzheimer Scotland

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This document outlines the work of the Communications & Marketing team at an organization over the course of a year. It describes various projects led by the team, including redesigning the website and intranet, growing social media followers, launching early diagnosis and dementia awareness campaigns, expanding the Dementia Friends program, producing publications and materials to provide information to members and the public, organizing conferences and events, and supporting membership and fundraising efforts. The team is made up of 8 people with roles in digital marketing, PR, membership, information provision, conferences, and administration.

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The document discusses Alzheimer Scotland's efforts to support people with dementia by ensuring early diagnosis and integrated care, developing local engagement through dementia advisors and community activities, and investing in communities, people, research, and partnerships. It also announces an upcoming Alzheimer Scotland conference in June and the Alzheimer Europe conference in October, both in Glasgow.

Workshop 5 service developmentsAlzheimer Scotland

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This document summarizes a conference for staff, members, and volunteers of a dementia care program called Enhanced Sensory Community Care. It describes the program, which provides person-centered care, sensory therapies, support for families, and pain management for people with late-stage dementia. It discusses the program's outcomes of improved quality of life and respite for caregivers. Staff and volunteers feel more confident supporting people with late-stage dementia. The document also reviews a post-diagnostic support project that aims to improve access to specialized dementia services.

Workshop 2 research & policy developmentsAlzheimer Scotland

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The document discusses the development of an advanced illness model for dementia care. It outlines Lindsay Kinnaird's presentation on developing an 8 pillars model of community support for moderate dementia and introducing a consultation process on an advanced dementia model. The presentation will cover factors that influence the lived experience of dementia, principles of care, and the evidence base. It seeks input on key issues in advanced dementia and ideas for taking the consultation into local areas.

Workshop 1 fundraising & marketing developmentsAlzheimer Scotland

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Alzheimer Scotland raised over £6 million in 2013/2014 from a variety of fundraising efforts including donations, sponsored events, memory walks, gift aid, companies and charitable trusts. They narrowly received £10,000 in funding from the People's Postcode Trust due to a difference of 23 votes. Many people volunteered or fundraised in their communities through various activities like Christmas card sales, collections, and donations in lieu of gifts. The funds raised help support Alzheimer Scotland's projects like their new Dumfries Dementia Resource Centre.

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1. The document outlines the agenda for Alzheimer Scotland's annual general meeting, including presentations on a new role focusing on innovation, dementia resource centers, and digital applications to help those with dementia. 2. Details are provided about several projects focused on supporting those with dementia, such as developing personalized support prompts through an app called Pocket Pal and conducting a study on the benefits of dogs for people with dementia. 3. The agenda also includes information on intervention dog pilots that provided feedback, fundraising efforts for dementia dogs, and a discussion of the blue plaques selection process used by English Heritage to honor notable individuals.

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The document summarizes the proceedings of the Members Advisory Forum of Apex International in Edinburgh on April 30, 2014. It discusses several initiatives including the Dementia Dog project, Dementia Circle, and wearable technology. Sessions covered end-of-life care ethics, palliative care, early diagnosis awareness campaigns, and dementia-friendly communities. The Motherwell example of a dementia-friendly community is presented, outlining their efforts to engage over 1000 people through training and materials. Dementia Friends initiatives in Scotland are also summarized, with plans to convert awareness trainees to volunteers and members.

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