This document discusses Public Led Online Trials (PLOT), which aims to train the public to conduct their own medical research trials online. It introduces PLOT's goals of empowering the public to improve decision making in healthcare. The document outlines several proposed trials that would allow the public to choose research topics and participate hands-on in tasks like designing studies, collecting data, and analyzing results. It promotes PLOT as a way to harness the untapped potential of the public and make research more inclusive.
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ThinkWell 2013
1. Can The Public Do Their Own Trials Online?
1Amy Price
Public Led Online Trials (PLOT)
2. Who are we?
The public is smart enough to master risk, odds and ethics while conducting research. They
have untapped potential for improving decision-making, education, policy and advocacy.
Join us to provide them with training and a voice
Dr. Amanda Burls
2Presented in cooperation with ThinkWell and Zooniverse
Amy Price
4. How To Get there From Here
4Amy Price
The most under-realized resource in research is the patient.
The Public are smart and they are architect consultants in their own healthcare
6. Learning is a Team Function
6
Learn Research Interactively
Choose the Question and the Involvement
Amy Price
7. Where The Public Decides Research Priorities
DO IT TOGETHER YOUR WAY!
Choose
topic
Hands
On
learning
Do The
Research
Bio-
Feedback for
Pain
Aging
without
Alzheimers
Disease
Drinking
water is it a
weight loss
tool?
8. Here is where we start
Project plan-
Pilot study
protocol
International
online
collaboration
Steering
group
Funding
Amy Price
17. Two Week Feasibility Water intake and Headache RCT
17Amy PriceThinkWell and Zooniverse YES WE CAN!
18. Two Week Feasibility Water intake and Headache RCT
18Amy PriceThinkWell and Zooniverse YES WE CAN!
19. .5
1
5 76 8
Join in
research
to find
out!
How much water do I drink?
2
2
2
1
3 4
1 3 4
Forgot? Drink the extra
when you remember
=500ml
=120ml
=1L
=2L
20. At ThinkWell The Public Does Research
ThinkWell
Transformation In Health Research
21. Input From Non Compliant Is Important too
21Amy PriceEmbedded and qualitative Research will Deepen What we Know
22. ThinkWell Where Public Applies Research
ThinkWell
Application Requires Preparation
The application of what we know
already will have a bigger impact
on health and disease than any
drug or technology likely to be
introduced in the next decade.
Sir Muir Gray.
23. Failure is an event not an identity
23
The miracle is not that I finished but that I had the courage to start - J Bingham
Amy Price
24. Embrace The Shake
24
Be limited to
be limitless
Creative
thinking
within the box
Public Led Research In Action
25. JOIN us to put the public at the heart of research
YESTERDAY YOU SAID TODAY
JUST DO IT
The more
distracted we are
by future promises
the less we focus
on current need
26. ThinkWell Public Led Online Trials
26
Building Research With You
Courage Grows Where Encouragement is Shared