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Can The Public Do Their Own Trials Online?
1Amy Price
Public Led Online Trials (PLOT)
Who are we?
The public is smart enough to master risk, odds and ethics while conducting research. They
have untapped potential for improving decision-making, education, policy and advocacy.
Join us to provide them with training and a voice
Dr. Amanda Burls
2Presented in cooperation with ThinkWell and Zooniverse
Amy Price
3Amy Price
AIMS
How To Get there From Here
4Amy Price
The most under-realized resource in research is the patient.
The Public are smart and they are architect consultants in their own healthcare
Application Requires Preparation
5Amy Price
Real Public Research is Active and informed Decision-Making
Learning is a Team Function
6
Learn Research Interactively
Choose the Question and the Involvement
Amy Price
Where The Public Decides Research Priorities
DO IT TOGETHER YOUR WAY!
Choose
topic
Hands
On
learning
Do The
Research
 Bio-
Feedback for
Pain
 Aging
without
Alzheimers
Disease
 Drinking
water is it a
weight loss
tool?
Here is where we start
Project plan-
Pilot study
protocol
International
online
collaboration
Steering
group
Funding
Amy Price
TRIALS STEERING GROUP
Amy Price
Professor Mike Clarke
PLOT Methodology Trials Advisor
Amy Price
Professor Lelia Duley
PLOT Chief Clinical Trials Lead
Director, Nottingham Clinical Trials Unit, Faculty of Medicine & Health Sciences
Amy Price
Amy Price
Dr. Eric T Meyer
PLOT Embedded Research Advisor
Zooniverse Provides Prime the Pump Funding
13Amy Price
Dr. Chris Lintott
ThinkWell and Zooniverse YES WE CAN!
Cycle of Knowledge
14
Question
Find
Answers
Priorities
Design
Do
Research
Analysis
Make an Informed Choice
The mind is not a vessel to be filled, but a fire to be kindled.  Plutarch
Amy Price
Join The Headache and Water
PLOT-IT Research Trial
Tell us about you
Trial information
Consent
Tasks
Whats in it for me
Amy Price
1
2
4
3
5
7
6
8
Should we
drink extra
water?
And if so, how much?
Join in
research
to find
out!
You expressed interest
in headaches
and drinking extra water
Amy Price
Two Week Feasibility Water intake and Headache RCT
17Amy PriceThinkWell and Zooniverse YES WE CAN!
Two Week Feasibility Water intake and Headache RCT
18Amy PriceThinkWell and Zooniverse YES WE CAN!
.5
1
5 76 8
Join in
research
to find
out!
How much water do I drink?
2
2
2
1
3 4
1 3 4
Forgot? Drink the extra
when you remember
=500ml
=120ml
=1L
=2L
At ThinkWell The Public Does Research
ThinkWell
Transformation In Health Research
Input From Non Compliant Is Important too
21Amy PriceEmbedded and qualitative Research will Deepen What we Know
ThinkWell Where Public Applies Research
ThinkWell
Application Requires Preparation
The application of what we know
already will have a bigger impact
on health and disease than any
drug or technology likely to be
introduced in the next decade.
Sir Muir Gray.
Failure is an event not an identity
23
The miracle is not that I finished but that I had the courage to start - J Bingham
Amy Price
Embrace The Shake
24
Be limited to
be limitless
Creative
thinking
within the box
Public Led Research In Action
JOIN us to put the public at the heart of research
YESTERDAY YOU SAID TODAY
JUST DO IT
The more
distracted we are
by future promises
the less we focus
on current need
ThinkWell Public Led Online Trials
26
Building Research With You
Courage Grows Where Encouragement is Shared
ThinkWell
Richard Branson Says Screw it JUST DO IT!
Together We Can
28
MAKE RESEARCH FUN
Help ThinkWell Make Fun Research Public Led
Amy Price

More Related Content

ThinkWell 2013

  • 1. Can The Public Do Their Own Trials Online? 1Amy Price Public Led Online Trials (PLOT)
  • 2. Who are we? The public is smart enough to master risk, odds and ethics while conducting research. They have untapped potential for improving decision-making, education, policy and advocacy. Join us to provide them with training and a voice Dr. Amanda Burls 2Presented in cooperation with ThinkWell and Zooniverse Amy Price
  • 4. How To Get there From Here 4Amy Price The most under-realized resource in research is the patient. The Public are smart and they are architect consultants in their own healthcare
  • 5. Application Requires Preparation 5Amy Price Real Public Research is Active and informed Decision-Making
  • 6. Learning is a Team Function 6 Learn Research Interactively Choose the Question and the Involvement Amy Price
  • 7. Where The Public Decides Research Priorities DO IT TOGETHER YOUR WAY! Choose topic Hands On learning Do The Research Bio- Feedback for Pain Aging without Alzheimers Disease Drinking water is it a weight loss tool?
  • 8. Here is where we start Project plan- Pilot study protocol International online collaboration Steering group Funding Amy Price
  • 10. Professor Mike Clarke PLOT Methodology Trials Advisor Amy Price
  • 11. Professor Lelia Duley PLOT Chief Clinical Trials Lead Director, Nottingham Clinical Trials Unit, Faculty of Medicine & Health Sciences Amy Price
  • 12. Amy Price Dr. Eric T Meyer PLOT Embedded Research Advisor
  • 13. Zooniverse Provides Prime the Pump Funding 13Amy Price Dr. Chris Lintott ThinkWell and Zooniverse YES WE CAN!
  • 14. Cycle of Knowledge 14 Question Find Answers Priorities Design Do Research Analysis Make an Informed Choice The mind is not a vessel to be filled, but a fire to be kindled. Plutarch Amy Price
  • 15. Join The Headache and Water PLOT-IT Research Trial Tell us about you Trial information Consent Tasks Whats in it for me Amy Price
  • 16. 1 2 4 3 5 7 6 8 Should we drink extra water? And if so, how much? Join in research to find out! You expressed interest in headaches and drinking extra water Amy Price
  • 17. Two Week Feasibility Water intake and Headache RCT 17Amy PriceThinkWell and Zooniverse YES WE CAN!
  • 18. Two Week Feasibility Water intake and Headache RCT 18Amy PriceThinkWell and Zooniverse YES WE CAN!
  • 19. .5 1 5 76 8 Join in research to find out! How much water do I drink? 2 2 2 1 3 4 1 3 4 Forgot? Drink the extra when you remember =500ml =120ml =1L =2L
  • 20. At ThinkWell The Public Does Research ThinkWell Transformation In Health Research
  • 21. Input From Non Compliant Is Important too 21Amy PriceEmbedded and qualitative Research will Deepen What we Know
  • 22. ThinkWell Where Public Applies Research ThinkWell Application Requires Preparation The application of what we know already will have a bigger impact on health and disease than any drug or technology likely to be introduced in the next decade. Sir Muir Gray.
  • 23. Failure is an event not an identity 23 The miracle is not that I finished but that I had the courage to start - J Bingham Amy Price
  • 24. Embrace The Shake 24 Be limited to be limitless Creative thinking within the box Public Led Research In Action
  • 25. JOIN us to put the public at the heart of research YESTERDAY YOU SAID TODAY JUST DO IT The more distracted we are by future promises the less we focus on current need
  • 26. ThinkWell Public Led Online Trials 26 Building Research With You Courage Grows Where Encouragement is Shared
  • 27. ThinkWell Richard Branson Says Screw it JUST DO IT!
  • 28. Together We Can 28 MAKE RESEARCH FUN Help ThinkWell Make Fun Research Public Led