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Portland, Oregon Area United States

Registry Manager

Responsible for the marketing, strategic positioning, technical support, and customer development for Genetic Alliance's Registry Pro project. This platform is available to all medical non-profits to support everything from basic demographics to highly sophisticated FDA/research-quality longitudinal studies. A gamified front end, highly granular consent/security, data element standardization & pre-built repositories, and a high efficient shared cost model make enable the smallest to the largest of Disease Advocacy Organizations to launch and manage a registry for their constituents.