Chronic Pain: Organize to win for patients

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The document outlines strategies for chronic pain patients to advocate against detrimental legislation at the state level. It emphasizes organizing delegations to meet representatives, building relationships with local media, and holding events like town halls to raise awareness on the opioid epidemic and its consequences. It encourages patients to unite, communicate effectively, and cultivate lasting power within the community to influence future policies regarding pain management.

Healthcare

C H R O N I C
PAIN
ORGANIZE TO WIN FOR PATIENTS

Fight bad legislation at the state level.
C H R O N I C
PAIN
ORGANIZE TO WIN FOR PATIENTS
States are often where the worst laws are made, and where laws have the most impact on
YOUR life. Visiting your rep’s district or state office in a delegation of pain patients sends a
powerful message. Meet with staff to discuss pending legislation and ways it will impact you.

Identify champions who can help your cause.
There should be lawmakers who are naturally on your side. Likewise, there should be EXPERTS, such
as doctors or nurses in your delegation. Talk to the local nursing union for help.
Identify key committee hearings and provide TESTIMONY
about how patients will be affected by bad legislation.
C H R O N I C
PAIN
ORGANIZE TO WIN FOR PATIENTS

Identify opponents who stand in your way.
Demand accountability. The opioid panic spreads the lie that pain medicine creates addiction.
We’re setting the record straight to protect ourselves and ALL patients.
Using Letters to the Editor (you can also pitch op-eds), let the public know that despite your cordial
and reasoned conversations regarding your position as a chronic pain patient requiring medicine to
survive, you State Representative chooses to side with “hysteria over science,” as ONE example of
messaging your delegation might choose to work around.
“Messaging” is a strategic component of every campaign and deserves a presentation of its own.
C H R O N I C
PAIN
ORGANIZE TO WIN FOR PATIENTS

EVENTS! Do a Town Hall inviting friendly
lawmakers, medical professionals and patients.
Great for TV media & print reports w/photo ops.
Location will be a meeting room in community center or church for approx 30-50 ppl. Tables up front.
Three to five honored guests that include lawmakers, med professionals & patients.
TOPIC: Opioid Epidemic, Consequences for Pain — Be creative with your topic, and be prepared to
provide time for your speakers to give interviews to media BEFORE the event (if you anticipate it will go
long). Send a MEDIA ADVISORY the day prior to the event, and a save the date a week before.
C H R O N I C
PAIN
ORGANIZE TO WIN FOR PATIENTS

Build relationships with your local media.
We become frustrated when The Media doesn’t cover our side of the story. It’s natural, though,
because The Opposition has built relationships with Big Media for years with lobbyists,
PR agencies and expense accounts. Now it’s our turn.
We’re nobodies to the Washington Post and NYTs, but with
a simple introduction to our neighbors in the local media, we become somebodies.
C H R O N I C
PAIN
ORGANIZE TO WIN FOR PATIENTS

Advanced work: press conferences with signs
Chances are, we’re not going to win first time out. It’s very likely that some folks in some states might
need to do press conferences in front of lawmakers’ offices with their delegation holding signs.
You know the drill. Invite media, send your message. This is an action that can be a big deal if timed
correctly, and will always be compelling with pain patients delivering the message.
NOTE: Develop the messages on your signs for the audience who will see it on the evening news.
Really think about how you want the visuals to connect with statement being read by your speakers,
because the video editor will show shots of the signs with a voiceover of the speaker.
C H R O N I C
PAIN
ORGANIZE TO WIN FOR PATIENTS

Building power together
This model is about BUILDING POWER into the chronic pain community.
We want that power to thrive long after we win this war against pain medicine because
we’re also vulnerable in the workplace, with insurance companies, and in so many other
ways that must be deprioritized until our is pain managed humanely.
Cultivating relationships with each other, with lawmakers,
and with media builds the power we need to win.
C H R O N I C
PAIN
ORGANIZE TO WIN FOR PATIENTS

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Chronic Pain: Organize to win for patients

1. C H R O N I C PAIN ORGANIZE TO WIN FOR PATIENTS

2. Fight bad legislation at the state level. C H R O N I C PAIN ORGANIZE TO WIN FOR PATIENTS States are often where the worst laws are made, and where laws have the most impact on YOUR life. Visiting your rep’s district or state office in a delegation of pain patients sends a powerful message. Meet with staff to discuss pending legislation and ways it will impact you.

3. Identify champions who can help your cause. There should be lawmakers who are naturally on your side. Likewise, there should be EXPERTS, such as doctors or nurses in your delegation. Talk to the local nursing union for help. Identify key committee hearings and provide TESTIMONY about how patients will be affected by bad legislation. C H R O N I C PAIN ORGANIZE TO WIN FOR PATIENTS

4. Identify opponents who stand in your way. Demand accountability. The opioid panic spreads the lie that pain medicine creates addiction. We’re setting the record straight to protect ourselves and ALL patients. Using Letters to the Editor (you can also pitch op-eds), let the public know that despite your cordial and reasoned conversations regarding your position as a chronic pain patient requiring medicine to survive, you State Representative chooses to side with “hysteria over science,” as ONE example of messaging your delegation might choose to work around. “Messaging” is a strategic component of every campaign and deserves a presentation of its own. C H R O N I C PAIN ORGANIZE TO WIN FOR PATIENTS

5. EVENTS! Do a Town Hall inviting friendly lawmakers, medical professionals and patients. Great for TV media & print reports w/photo ops. Location will be a meeting room in community center or church for approx 30-50 ppl. Tables up front. Three to five honored guests that include lawmakers, med professionals & patients. TOPIC: Opioid Epidemic, Consequences for Pain — Be creative with your topic, and be prepared to provide time for your speakers to give interviews to media BEFORE the event (if you anticipate it will go long). Send a MEDIA ADVISORY the day prior to the event, and a save the date a week before. C H R O N I C PAIN ORGANIZE TO WIN FOR PATIENTS

6. Build relationships with your local media. We become frustrated when The Media doesn’t cover our side of the story. It’s natural, though, because The Opposition has built relationships with Big Media for years with lobbyists, PR agencies and expense accounts. Now it’s our turn. We’re nobodies to the Washington Post and NYTs, but with a simple introduction to our neighbors in the local media, we become somebodies. C H R O N I C PAIN ORGANIZE TO WIN FOR PATIENTS

7. Advanced work: press conferences with signs Chances are, we’re not going to win first time out. It’s very likely that some folks in some states might need to do press conferences in front of lawmakers’ offices with their delegation holding signs. You know the drill. Invite media, send your message. This is an action that can be a big deal if timed correctly, and will always be compelling with pain patients delivering the message. NOTE: Develop the messages on your signs for the audience who will see it on the evening news. Really think about how you want the visuals to connect with statement being read by your speakers, because the video editor will show shots of the signs with a voiceover of the speaker. C H R O N I C PAIN ORGANIZE TO WIN FOR PATIENTS

8. Building power together This model is about BUILDING POWER into the chronic pain community. We want that power to thrive long after we win this war against pain medicine because we’re also vulnerable in the workplace, with insurance companies, and in so many other ways that must be deprioritized until our is pain managed humanely. Cultivating relationships with each other, with lawmakers, and with media builds the power we need to win. C H R O N I C PAIN ORGANIZE TO WIN FOR PATIENTS

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