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Myanmar - Current Situation in Control Strategies and Health Systems in Asia

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Thalassaemia International Federation

Current Situation in Control Strategies and Health Systems in Myanmar, Asia by PROFESSOR DR. NE WIN, DIRECTOR (LABORATORY AND BLOOD SERVICE), MINISTRY OF HEALTH, UNION OF MYANMAR

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CURRENT SITUATION IN CONTROL STRATEGIES AND HEALTH SYSTEMS IN ASIA C MYANMAR PROFESSOR DR NE WIN DR. DIRECTOR (LABORATORY AND BLOOD SERVICE) MINISTRY OF HEALTH UNION OF MYANMAR
DEMOGRAPHIC DATA ? - about 57 million population ? - 135 minor ethnic groups and seven major indigenous races ? - annual bi th rate 2 3% l birth t 2.3% ? - 12,000,000 kyats pe yea ,000,000 yats per year ? - 1.2% of total budget on health
HEALTH SYSTEM ? Both private and public sector are under y Health ministry ? Cost sharing system; free of charge system ? No special policies for chronic diseases ? Nor for hemoglobin disorders
EPIDEMIOLOGY ? ALPHA THAL CARRIER RATE 10-14% ? BETA THAL CARRIER RATE 0 4 C 1 8 % 0.4 1.8 ? E-THAL CARRIER RATE 20-25% ? S-THAL CARRIER RATE C NIL ? 1300 C 6500 newborns with transfusion dependent thalassemia (both alpha and beta) e er year every ear
PATIENT REGISTRY ? OUT-PATIENT AND IN-PATIENT REGISTRY IN EVERY HOSPITAL ? DCR AT CHILDREN HOSPITAL ? BLOOD TRANSFUSION SERVICES AT STATE AND DIVISIONAL HOSPITAL ? NATIONAL BLOOD CENTER
NATIONAL PREVENTION PROGRAMME ? NIL AT ALL LEVEL
DIAGNOSTIC SERVICES AVAILABLE ? Population screening C Nil P l ti i ? Prenatal diagnosis C Nil g ? Antenatal diagnosis C Nil ? Genetic counseling C Nil ? Molecular diagnostic facilities C available only at NHL ? Primary level C Nil ; Regional C Nil y g ? National C available
BLOOD AND BLOOD COMPONENTS ? National Blood Policy founded in 2010 ? National blood and blood product law 2003
IRON CHELATION ? All chelators available ? Easily accessible at central level hospital ? given by community cost sharing system ? DFO - about 10% of cases (according to DCR, Children hospital data) C , C d e osp ta
? Multi disciplinary teams to monitor cardiac and endocrine complications C only at the p y central / tertiary level hospitals
? MRI facilities are available only at tertiary p care hospitals
? No Reference Expert Center

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Myanmar - Current Situation in Control Strategies and Health Systems in Asia

  • 1. CURRENT SITUATION IN CONTROL STRATEGIES AND HEALTH SYSTEMS IN ASIA C MYANMAR PROFESSOR DR NE WIN DR. DIRECTOR (LABORATORY AND BLOOD SERVICE) MINISTRY OF HEALTH UNION OF MYANMAR
  • 2. DEMOGRAPHIC DATA ? - about 57 million population ? - 135 minor ethnic groups and seven major indigenous races ? - annual bi th rate 2 3% l birth t 2.3% ? - 12,000,000 kyats pe yea ,000,000 yats per year ? - 1.2% of total budget on health
  • 3. HEALTH SYSTEM ? Both private and public sector are under y Health ministry ? Cost sharing system; free of charge system ? No special policies for chronic diseases ? Nor for hemoglobin disorders
  • 4. EPIDEMIOLOGY ? ALPHA THAL CARRIER RATE 10-14% ? BETA THAL CARRIER RATE 0 4 C 1 8 % 0.4 1.8 ? E-THAL CARRIER RATE 20-25% ? S-THAL CARRIER RATE C NIL ? 1300 C 6500 newborns with transfusion dependent thalassemia (both alpha and beta) e er year every ear
  • 5. PATIENT REGISTRY ? OUT-PATIENT AND IN-PATIENT REGISTRY IN EVERY HOSPITAL ? DCR AT CHILDREN HOSPITAL ? BLOOD TRANSFUSION SERVICES AT STATE AND DIVISIONAL HOSPITAL ? NATIONAL BLOOD CENTER
  • 6. NATIONAL PREVENTION PROGRAMME ? NIL AT ALL LEVEL
  • 7. DIAGNOSTIC SERVICES AVAILABLE ? Population screening C Nil P l ti i ? Prenatal diagnosis C Nil g ? Antenatal diagnosis C Nil ? Genetic counseling C Nil ? Molecular diagnostic facilities C available only at NHL ? Primary level C Nil ; Regional C Nil y g ? National C available
  • 8. BLOOD AND BLOOD COMPONENTS ? National Blood Policy founded in 2010 ? National blood and blood product law 2003
  • 9. IRON CHELATION ? All chelators available ? Easily accessible at central level hospital ? given by community cost sharing system ? DFO - about 10% of cases (according to DCR, Children hospital data) C , C d e osp ta
  • 10. ? Multi disciplinary teams to monitor cardiac and endocrine complications C only at the p y central / tertiary level hospitals
  • 11. ? MRI facilities are available only at tertiary p care hospitals
  • 12. ? No Reference Expert Center