"Hacking Health" by Juhan Sonin
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The document discusses the author's journey into designing for health and understanding his own health metrics. He initially had little awareness or data about his health indicators. Over time, he began collecting his own health data, designing health tracking tools, and engaging with standards bodies. He prototyped concepts like a personal health card and health kiosk. The goal was to help individuals and medical professionals make more informed health decisions through accessible data and design.
"Hacking Health" by Juhan Sonin
- 1. Hacking Health Designing for and understanding my health Juhan Sonin March 2011
- 2. Your health data is going 油糸庄乙庄岳温鉛.
- 3. Your pets health data is 油糸庄乙庄岳温鉛.
- 4. How did I get into the Design of Health? I didnt have a pulse on my health, let alone the data. Cholesterol Check at MITRE in 2006
- 5. 370 Total Cholesterol , 2006 Cheese and salami was coursing through my blood stream (based on a meal the night before the cholesterol test)
- 6. I had no clue what my health metrics were. I had a beLer pulse on the health of my car.
- 7. and the Problem is Increasingly complex systems Tool and Methodology gap Decision makers are swamped with con鍖icDng data Our work is increasingly mulD-足dimensional (not a 鍖at-足 decision space) ArDfacts driving decisions need to be coordinated, presented Minimal transparency into key health metrics
- 9. How do I (as a pa7ent, nurse, doctor, proxy) make quicker, more accurate decisions?
- 13. Started collecOng and designing the basics Weight, Waist circumference, Cholesterol, Exercise, Food intake
- 14. From sketch to 油糸庄乙庄岳温鉛
- 15. Early health card 油糸艶壊庄乙稼壊
- 16. Got a checkup. First Ome in 6 years. But The doctors back was to me while he asked me ques7ons (and then he typed the answers into the computer), zero ques7ons about Life outside of tradi7onal health info, no physical or emailed takeaways of next steps from the exam
- 17. How do I become an informed and empowered paOent?
- 18. HealthCard was born Prototyped with doctors, nurses, emergency responders and oh yea, paOents.
- 19. Used real data my own data Design with fake data = fake design Real data: needs to be grokked by you has min/max values, outliers needs ampli鍖caOon, cleanup begets real feedback + forces people to make real decisions
- 20. System view of my familys health
- 21. Followed doctors and nurses at several Boston hospitals to SEE Healthcare in acOon. Partner in crime, Rob McCready watching surgery.
- 22. Our forecast
- 23. Designing a beauOful and clinically relevant experience without beauOful data = recipe for disaster.
- 24. So we got into the data + standards game: hData projectlaika.org projecthdata.org Open source so^ware has become part of the CCHIT hData is a method of storing and exchanging health cerO鍖caOon informaOon Laika is responsible for automaOng data Goal: In鍖uence/create Health IT standards to ease interoperability tesOng of Electronic Health Record implementaOon and speed adopOon systems Why? Complexity and design of current standards are HITSP Specs on ConOnuity of Care a huge barrier to adopOon and e鍖ecOve usage IHE specs on Document Exchange
- 25. US Healthcard Smartcard to standardize the healthcare entry point transacOon Prototype US Healthcard data model, design, and explore HHS adopOon
- 26. Why not a 油1040-足H遺?
- 28. Health devices are gehng cheaper Costs approaching zero. The cost of data is also approaching zero.
- 30. Daily acOvity dashboard Using 2+ years (0.999 human upOme)
- 32. Part of my daily rouOne At work
- 33. Monthly Cholesterol and glucose self tesOng
- 34. Jumped into personal genomics 23andMe (for all my family members), Personal Genome Project ParOcipant
- 35. 23andme.com
- 36. Medical home IMPLANT PULSE OX BLOOD- PRESSURE CUFF Cell Phone PEDOMETER Digital Home WEIGHT SCALE PC Internet Family Disease Healthcare Personal FITNESS care management Health EQUIPMENT providers givers services Records MEDICATION Personal Health System TRACKING
- 37. Telemedicine Intel Health Guide: It integrates personal communicaDon with the doctor, medicaDon reminders, educaDonal informaDon, and videoconferencing for the home.
- 38. Assisted living I opened the door Im watching TV Im going to bed Sensors: Mo7on, Fire/Smoke/CO2, Occupancy (Bed/Chair), Use (Door, Stove, Fridge, Tub), Loca7on (Alzheimer's), Fall Alarms, Water 鍖ow
- 39. Sensors throughout Spare Bedroom Master Bedroom Bathroom Living Room Kitchen
- 45. Enable online clinic for the pracOce of medicine Evolve the FOSS Healthcare as a so^ware service model School nurse at 鍖rst; evolve to state-足of-足the-足art ambulatory screen clinic (diabetes, obesity, cardiovascular, asthma, allergies) in 2 years
- 46. So we prototyped a health staOon.
- 48. Self-足service health kiosk Brief engagement to assess current health Simple and minimally invasive Get a health snapshot or monitor changes over Ome Open planorm Can add addiOonal measurement devices Bluetooth, Wi鍖, and web accessible Accessible API for building home grown apps Measurements Blood pressure Weight Body composiOon HydraOon Pulse Temperature Eyesight Hearing RespiraOon
- 49. Evolve from nurse-足aLended to self-足service health experience
- 52. How do you get a pulse on key health metrics without a single tear? Early detecOon of chronic diseases will be as easy as carrying your cell phone in your pocket. Engaged paOents will increasingly self-足check and self-足monitor using bloodless, self-足 administered medical tests.
- 54. 5 million doctors 6.7 billion pa,ents
- 56. 4.7 billion cell phones 6.8 billion paOents
- 58. paOents SCALE
- 59. mHealth Axioms Bring the examinaDon room to the paDent Bring the collecDve experDse of the pracDce, the standard of care, to the paDents bedside or home Migrate from a system of episodic evaluaDon to a system of conDnuous assessment Expect paDents and their families to be their own primary care provider (key member of the care team)
- 67. hGraph Compelling, standardized visual representa7ons of a pa7ents health statuson the celltop Designed to increase awareness of the individuals factors that can a鍖ect ones health Open source healthcare applica7on Created for mobile devices, star7ng with the iPhone and iPad Your health in one picture Users provide, view, share, and understand a holis7c view of their health Based on an individuals health data, iden7鍖es where an individuals health numbers are, and where they should be Pa7ent focused, with professional clinical relevance hScore Single aggregated number ranging from 1-足100 that represents best knowledge status of an individuals health Experimental measure correlated with sta7s7cal data from open sources
- 73. hGraph Used as status indicator for current plan of care Recent updates can trigger just in Dme healthcare consults AddiDonal mHealth monitors augment hGraph scope and real-足Dme nature Live consults with healthcare professionals
- 75. 85% of adults have a cellphone today
- 76. The Future: Stage zero detecOon 90% Survive 10% Survive Early stage detecDon Late stage detecDon
- 77. Special thanks to: Rob Dingwell Andrew Gregorowicz Dirk Knemeyer Rob McCready Harry Sleeper Brian Staats
- 78. Hacking Health Designing for and understanding my health Juhan Sonin