Health 2.0 Europe - Keynote - The Danish National e-Health Portal
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The Danish National e-Health Portal Sundhed.dk provides citizens access to their personal health information and the ability to book appointments, renew prescriptions, and communicate with doctors. It also offers medical information, quality ratings of hospitals, and online support groups for patients. Usage has increased significantly since its launch in 2003. Clinical staff acceptance is high due to time savings from digital health records. Sundhed.dk has received international recognition and its continued funding indicates the owners view it as a success.
Health 2.0 Europe - Keynote - The Danish National e-Health Portal
- 1. The Danish National e-Health Portal Health 2.0 CEO: Morten Elb脱k Petersen
- 2. The Danish Health Care System Public health care (85 % of costs are financed through taxes) Free access to most health services for all Danish citizens A homogenous health care system 3 levels: NATIONAL: Parliament, Government / Ministry of Health; makes the laws for the two acting levels REGIONAL: 5 Regions; Hospitals (about 80), Psychiatry, Primary health care, e.g. LOCAL: 98 Municipalities, Child nursing, Home nursing, Preventive treatment and health promotion eg.
- 3. Time line: Development in Danish health it 1992: Health Data Network established 1994: MedCom established to standardize messages 2001: The regions involve the national government in the establishment of a National eHealth Portal 2003: the eHealth Portal (sundhed.dk) is launched 2004: the eHealth Portal supports log-on, and displays personal information 2008: Patient-to-patient dialogue introduced on sundhed.dk 2009: the eHealth Portal updates platform 2010: All regions make EHRs available using the same standard
- 5. Objectives for sundhed.dk Sundhed.dk: information related to the use of the healthcare service communication between patients and the health care service support the patient in attending to his or her individual health situation. inter-patient communication on how to cope with chronic diseases; online patient networks Sundhed.dk is a national framework and a national integration platform which integrates data from 85 (existing) sources
- 6. Features: Citizens/Patients Directory of names and addresses Contact information E-services (booking, prescription renewal, consultation) (log on) E-commerce (pharmacies) (log on) Comparison of prices, quality and accessibilty Information about prevention and treatment Medical information (eg. information about treatments) Waiting list information from hospitals Patient satisfaction mesaures on every hospital dep. Smileys for every hospital Preventive medicine Health laws and regulations Patient to patient dialogue connecting patients coping with similar issues Access to own health data (log on) Cross-sectorial personal electronic medicine profile Patients medical history (since 1977) Electronic Health Record (from hospital records) Online Donor Registration and access to own data
- 7. Features: Health professionals Information for GP (log on) Web access to laboratory data ICPC search of diagnoses from GPs electronic healthcare program (Linkportal) Online access to Medical Handbook (open for all users, but aimed at GPs) All Health care professionals (log on) eMedicine records Electronic patient records etc (almost total coverage of the 5 regions) Waiting list information from hospitals Cochrane library Regional and national information Contact information (authorities, departments, health personnel) Information on referral principles to hospitals/regions Preventive medicine Health laws and regulations Laboratories and consultants
- 8. Evaluation and challenges CEO: Morten Elb脱k Petersen
- 9. How to measure the success? Signs of impact: Acceptance from the public Acceptance from clinical staff International and peer recognition The owners willingness to invest further
- 10. Public acceptance: Total unique visitors 2003 -2010 Unique visitors, month by month 350000 300000 250000 200000 Serie1 150000 100000 50000 0 dec-03 apr-04 aug-04 dec-04 apr-05 aug-05 dec-05 apr-06 aug-06 dec-06 apr-07 aug-07 dec-07 apr-08 aug-08 dec-08 apr-09 aug-09 dec-09
- 11. Specific results from patient-to-patient dialogue Since 2008 hospital wards and patient organizations have cooperated to create on-line dialogue where patients with similar chronic diseases can share experiences. Evaluation >>> patient networks: many readers (anonymous users) that return frequently fewer bloggers/contributors (10 %). Real interaction and exchange of advice and contact Many patients respond that they find new information and knowledge of how other patients experience their condition. Most find that the information puts them at ease while a minority become more anxious. not 100 % clear if patients find that their lives have improved due to the patient networks online.
- 12. Acceptance from clinical staff 1/3 of the users on a daily basis are health professionals the digital exchange of patient data saves time for the patients and for professionals.
- 13. International and peer recognition EU-award 2004: e-health, along with MedCom Top of the web 2005 by The Danish Ministry of Science, Technology and Innovation and The National IT and Tele Agency E-commerce award 2006 by The Danish eBusiness Association and The Danish IT Industry Association The digitalization award 2006: by among others The Digital Taskforce, The Ministry of Science, Technology and Innovation and The Danish IT Industry Association The Computerworld Honours Program 2007 the committee was searching for organizations and institutions that are creating the global best practice in leading the worlds ongoing IT revolution. * Top spot for Denmark in Health Consumer Powerhouse rating 2008 attributed to sundhed.dk * The eHealth portal singled out as leading worldwide by ITIF - The Information Technology and Innovation Foundation (ITIF) based in Washington, DC.
- 14. The owners willingness to invest further The partners have raised the budget 20% from 2010.
- 15. Existing 2.0 features and use Patients in AC therapy or with diabetes can contribute with data and receive advice Upon identification, the most recent data from different sources are highligted for the citizens (called Mit Sundhedsoverblik, My Health at a glance) Patient to patient dialogue connecting patients coping with similar issues 2nd version platform launched soon
- 16. Plans for further 2.0 development The strategy for 2010-2012 includes: More patient-to-patient dialogue Extended opportunities for the citizens to comment and add data to their own records etc. Providing sundhed.dk-services as content for other platforms. Telemedicine Enabling access from mobile phones.
- 17. Lessons for other parts of Europe Succes can be replicated but most likely in countries with homogenous health care system one source of financing for health care free choice of health care provider within a cooperating sector equal focused on transparency for the citizen, quality improvement and cost reduction agreed standards of data exchange between operators and authorities a high level of trust regarding the public sector and the access to personal information