Itu presentation on participatory design with people with dementia
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This document describes the work of Niels Hendriks and the Social Spaces research group in Genk, Belgium. The multidisciplinary group conducts participatory design research projects focused on arts, culture, health, and media. One area of focus is designing with people who have dementia. The group develops low-tech digital and physical artifacts and methods for meaningfully involving people with dementia in the design process. Their approach aims to understand each person's unique experience and narrative. They share learnings through "method stories" that describe applying techniques in specific contexts rather than generalizable methods. Future work will explore balancing power and further applying their situated action approach.
Itu presentation on participatory design with people with dementia
- 2. Social Spaces I CUO Media, Art & Design Research Multidisciplinary team consisting of criminologist, philosopher, ergonomic expert, social scientists, literature scientist, product designers, digital and game designers, jewel designer, video and storytelling artist, etc. 15 research/service projects;10 phd Related to educational programs on product design, digital design, film making, Affiliated with Centre for User Experience Research (CUO) and LUCA
- 3. Social Spaces I CUO Context of working City of Genk (vicinity of Aachen, Maastricht) Coal mines +1988 - Ford Factory +2014 C-mine, Create new domains for employment in the creative sector Expected unemployment rate of 20% High youth unemployment - Ethnic variety Decentralized city structure What is the role of an academic research and design institute in such a context?
- 4. Social Spaces I CUO Design of artefacts (re)design of art- and design methods Work in the domains of Arts & Culture, Future Health & Media & Entertainment. Exploration of the social character of design, art and media in our society Central to our way of working: participatory design/ Scandinavian tradition Lowering the barrier to participate in design processes Situatedness: to embed the design process in the actual context
- 5. Working with persons with dementia Way of working tries to ameliorate the life of persons with dementia Research into methods on involving persons with dementia Creation of low tech digital and physical artefacts
- 6. Dementia Umbrella term Aphasia, Amnesia, Agnosia, Appraxia; psychiatric & cognitive ailments. Very individual trajectory
- 7. PD & Dementia Traditional PD methods > Issues assume that the participants are cognitively able, can make use of visual and hands-on techniques; or require a high level ofabstraction ability.
- 8. Work so far Guidelines Challenges AtHome: rethinking participation was set up
- 9. AtHome PD as a situated action. Designer/researcher enters the subjective world of the PwD with an understanding of the narratives inwhich they (the persons with dementia) are embedded Script / Actors/ Props/ Stage
- 10. AtHome The way we define participation PD > work context. / Jones: too strong a focus on the visual and the verbal PD vs User Centered design?
- 11. AtHome From group to individual, generalisability vs transferrability. Uniqueness needs individual approach Also in artefacts > generalisability vs transferrability
- 12. AtHome Method stories as a way to share methodologies. Original Phd research dedicated method for working with PwD <> uniqueness Method stories: story on the application of a method in working in a participatory way with PwD. Why > How.
- 13. Future research questions ? Suitability & transferrability of the situated action-approach > method stories ? Balancing power in PD? Materiality, temporality, Link with Give&Take-project
- 14. niels hendriks niel@itu.dk niels.hendriks@soc.kuleuven.be http://www.socialspaces.be http://www.dementialab.be Most recent paper Codesign with people living with cognitive or sensory impairments: a case for method stories and uniqueness