際際滷

際際滷Share a Scribd company logo

Lecture 3--Research Ethics

Download as PPT, PDF
Brittany Milbourn
Brittany Milbourn

This document discusses several key ethical considerations in research including privacy, voluntary participation, informed consent, and the role of institutional review boards (IRBs). It addresses issues like protecting private participant information, obtaining truly voluntary and informed consent, and ensuring the rights and dignified treatment of research subjects. The document also notes that while science aims to be politically neutral, research still occurs in a political environment and funding decisions have political aspects. Unethical researchers may face employment consequences, debarment from future funded work, or litigation depending on whether approved protocols were followed.

1 of 14
Downloaded 92 times
#3 Location In The Research Process Formulating Research Questions Previous Research Craft Knowledge Appropriate Design Appropriate Sampling Decisions Ensure Research Ethics Data Collection & Management Data Analysis Interpretation Dissemination Ongoing Research
Elements of Ethical Treatment Privacy Voluntary Full Information Consent
Privacy Information about research participants is private (Anonymity vs. Confidentiality) Treat with same standards as clinical information Data Storage and retrieval Security Anonymity Data Reporting Aggregated Identifying Information
Question One You are participating in a study about services satisfaction in a mental health clinic. A research staff member has hard copy files in their car, and their car is stolen. How do you feel upon finding out your name was in those files? What are the ethical ramifications?
Voluntary Participation is voluntary Free of coercion Free of undue influence Free of duress Withdrawal is free At any time For any reason With no adverse consequences Standing to decide Capacity Legal Standing
Question Two You are a patient at a public health clinic, and you are also a TANF recipient. A research recruiter offers you $250 to participate in a research study. You agree to participate and quickly sign the informed consent form. How voluntary is your participation?
Full Information Purpose of research Deception Debriefing Procedures Time Expectations Procedural Expectations Risks Psychological Physical Unanticipated Risks Benefits Realistic For Self For Greater Good Alternatives Resources available to non-participants
Consent Informed Consent Full Information Voluntary Privacy Standing Consent Informed Assent- used with persons with diminished capacity (i.e. children), but still based on full information and is voluntary. Consent is a Process Between researcher and potential participant to facilitate decision making and define the relationship.
Question Three You are an adolescent and your parents have given their informed consent for you to participate in a study of different teaching methods. The researcher introduces you to your new instructor and the instructor asks you to have a seat in the class. How do you feel? What are the ethical ramifications of this situation?
Before Becoming Participants: Clients Voluntary Involuntary Patients Duress Citizens Civil Rights PEOPLE Dignity Inherent Worth
Researcher Behavior Follow Ethical Protocols Secure IRB Approval Secure Informed Consent Follow Approved Protocols Accurate Reporting Data Accuracy Share Information Safely Give credit where it is due Based on substantial contribution Make dissemination decisions a priority
What Is An IRB? Institutional Review Board Federally Mandated Ensure Rights and ethical treatment of Research Participants Composition Researchers Citizens Representatives For Vulnerable Groups Documentation Research Protocols Informed Consent Approvals
Politics and Research All research occurs in a political environment Biases Gender Cultural Lenses Feminism Socialism Racism Science is politically neutral, but scientists, as people, hold political views Accepted scientific practices are a safeguard against intrusions of bias Restricted inquiry Fear Misuse and/or distortion Research funding is political and scientific
If Researchers Are Unethical Employment Reprimand Suspension / Termination Debarment Banned From Conducting Funded Research For A Fixed Time Period (e.g.; 3 Years) Must Disclose Debarment Forever Litigation Were Approved Protocols Followed? Yes = Shared Liability By Researcher / Institution No = Researcher Liability

More Related Content

Lecture 3--Research Ethics

  • 1. #3 Location In The Research Process Formulating Research Questions Previous Research Craft Knowledge Appropriate Design Appropriate Sampling Decisions Ensure Research Ethics Data Collection & Management Data Analysis Interpretation Dissemination Ongoing Research
  • 2. Elements of Ethical Treatment Privacy Voluntary Full Information Consent
  • 3. Privacy Information about research participants is private (Anonymity vs. Confidentiality) Treat with same standards as clinical information Data Storage and retrieval Security Anonymity Data Reporting Aggregated Identifying Information
  • 4. Question One You are participating in a study about services satisfaction in a mental health clinic. A research staff member has hard copy files in their car, and their car is stolen. How do you feel upon finding out your name was in those files? What are the ethical ramifications?
  • 5. Voluntary Participation is voluntary Free of coercion Free of undue influence Free of duress Withdrawal is free At any time For any reason With no adverse consequences Standing to decide Capacity Legal Standing
  • 6. Question Two You are a patient at a public health clinic, and you are also a TANF recipient. A research recruiter offers you $250 to participate in a research study. You agree to participate and quickly sign the informed consent form. How voluntary is your participation?
  • 7. Full Information Purpose of research Deception Debriefing Procedures Time Expectations Procedural Expectations Risks Psychological Physical Unanticipated Risks Benefits Realistic For Self For Greater Good Alternatives Resources available to non-participants
  • 8. Consent Informed Consent Full Information Voluntary Privacy Standing Consent Informed Assent- used with persons with diminished capacity (i.e. children), but still based on full information and is voluntary. Consent is a Process Between researcher and potential participant to facilitate decision making and define the relationship.
  • 9. Question Three You are an adolescent and your parents have given their informed consent for you to participate in a study of different teaching methods. The researcher introduces you to your new instructor and the instructor asks you to have a seat in the class. How do you feel? What are the ethical ramifications of this situation?
  • 10. Before Becoming Participants: Clients Voluntary Involuntary Patients Duress Citizens Civil Rights PEOPLE Dignity Inherent Worth
  • 11. Researcher Behavior Follow Ethical Protocols Secure IRB Approval Secure Informed Consent Follow Approved Protocols Accurate Reporting Data Accuracy Share Information Safely Give credit where it is due Based on substantial contribution Make dissemination decisions a priority
  • 12. What Is An IRB? Institutional Review Board Federally Mandated Ensure Rights and ethical treatment of Research Participants Composition Researchers Citizens Representatives For Vulnerable Groups Documentation Research Protocols Informed Consent Approvals
  • 13. Politics and Research All research occurs in a political environment Biases Gender Cultural Lenses Feminism Socialism Racism Science is politically neutral, but scientists, as people, hold political views Accepted scientific practices are a safeguard against intrusions of bias Restricted inquiry Fear Misuse and/or distortion Research funding is political and scientific
  • 14. If Researchers Are Unethical Employment Reprimand Suspension / Termination Debarment Banned From Conducting Funded Research For A Fixed Time Period (e.g.; 3 Years) Must Disclose Debarment Forever Litigation Were Approved Protocols Followed? Yes = Shared Liability By Researcher / Institution No = Researcher Liability