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Listening to life stories from inner London: mobile interviews and map-making

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Presentation by Sue Ledger, Sue Thorpe and Lindy Shufflebotham at an ESRC funded seminar series about doing participatory research with people with high support needs.

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Listening to life stories from inner London: mobile interviews and map-making The Staying Local Project: Sue Thorp Sue Ledger Lindy Shufflebotham Contact susan.ledger@open.ac.uk 息 Ledger, Thorp & Shufflebotham(2013)
Our time with you today Setting the scene : The Staying Local Project and what we wanted to find out Mobile interviews and map making Reflections Questions 息 Ledger, Thorp & Shufflebotham(2013)
Why research local support? For a long time government policy has said that all people with learning disabilities should receive support in their local community (HM Govt 2007, ADSS/DH 2011) But large numbers of people continue to be moved away from their local area to receive a service People with high support needs are more likely to be moved (Becker 2006, DH 2007) Problem particularly bad in inner London (Whelton, 2009) where research took place 息 Ledger, Thorp & Shufflebotham(2013)
Kensington and Chelsea - 2006 119 people with high support needs funded by the borough 息 Ledger, Thorp & Shufflebotham(2013)
25 were living in Kensington & Chelsea 94 living away 息 Ledger, Thorp & Shufflebotham(2013)
Why it was vital to include people with high support needs? There are very few stories of local support told by people with learning disabilities themselves We wanted to find out if the stories of people who stayed local could help others to do the same 息 Ledger, Thorp & Shufflebotham(2013)
How we did the research Nine people reconstructed and recorded their local life stories (including 5 people described as having high support needs) Interviews with 36 people involved in local support inc. families, front line staff, advocates, campaigners, managers Case records and archives Mobile Interviews and Map Making were developed during the research 息 Ledger, Thorp & Shufflebotham(2013)
How Mobile interviews came about We found that walking or driving together in the areas where people had grown up made it much easier to share information about important people and places We called these mobile interviews. Altogether we did 14 mobile interviews 息 Ledger, Thorp & Shufflebotham(2013)
Sues Film 息 Ledger, Thorp & Shufflebotham(2013)
Driving, walking and taking photos My old front door 息 Ledger, Thorp & Shufflebotham(2013)
How Life Journey maps came about: Lennies Story Lennie was one of the first people to record his story He had photographs of the house where he used to live with his family He wanted to show staff where he had lived Staff couldnt understand Lennie or recognise the streets in the photographs-they didnt live in the area. They did not know Lennies history To explain we put Lennies photos on a large A-Z Map Lennie could follow the photos -Staff were able to understand the locations The life journey maps were developed to help people keep and share their stories 息 Ledger, Thorp & Shufflebotham(2013)
Making the life journey maps Some people chose family photographs to represent a part of their life story People also used photographs taken during mobile interviews Chosen images were then superimposed on maps People used multi media to select images for their individual maps 息 Ledger, Thorp & Shufflebotham(2013)
息 Ledger, Thorp & Shufflebotham(2013)
Evaluation of the maps by people with learning disabilities Its good to have everything in one place and in the right order The maps helped me talk about the moves Ive had We have all lost parts of our past. Its good to choose my own photos The map helped me to tell people about myself and my family 息 Ledger, Thorp & Shufflebotham(2013)
Using the maps 息 Ledger, Thorp & Shufflebotham(2013)
Reflections: what went well The maps and mobile interviews, supported people to own and share their life stories Ideas developed with people with high support needs benefitted everyone Openness to the development of new tools and ways of working seeing what works well different people Being flexible enough to change if original method doesnt work Remembering that everyone is an expert in terms of their own lived experience 息 Ledger, Thorp & Shufflebotham(2013)
Barriers to Inclusion Access . Time pressure Fear of failure Worry about risk and harm Resources Researcher skills BUT EVERYONE HAS A STORY TO TELL... or as Robert said - You guys story makes you who you are today 息 Ledger, Thorp & Shufflebotham(2013)
Thank you very much Questions

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Listening to life stories from inner London: mobile interviews and map-making

  • 1. Listening to life stories from inner London: mobile interviews and map-making The Staying Local Project: Sue Thorp Sue Ledger Lindy Shufflebotham Contact susan.ledger@open.ac.uk 息 Ledger, Thorp & Shufflebotham(2013)
  • 2. Our time with you today Setting the scene : The Staying Local Project and what we wanted to find out Mobile interviews and map making Reflections Questions 息 Ledger, Thorp & Shufflebotham(2013)
  • 3. Why research local support? For a long time government policy has said that all people with learning disabilities should receive support in their local community (HM Govt 2007, ADSS/DH 2011) But large numbers of people continue to be moved away from their local area to receive a service People with high support needs are more likely to be moved (Becker 2006, DH 2007) Problem particularly bad in inner London (Whelton, 2009) where research took place 息 Ledger, Thorp & Shufflebotham(2013)
  • 4. Kensington and Chelsea - 2006 119 people with high support needs funded by the borough 息 Ledger, Thorp & Shufflebotham(2013)
  • 5. 25 were living in Kensington & Chelsea 94 living away 息 Ledger, Thorp & Shufflebotham(2013)
  • 6. Why it was vital to include people with high support needs? There are very few stories of local support told by people with learning disabilities themselves We wanted to find out if the stories of people who stayed local could help others to do the same 息 Ledger, Thorp & Shufflebotham(2013)
  • 7. How we did the research Nine people reconstructed and recorded their local life stories (including 5 people described as having high support needs) Interviews with 36 people involved in local support inc. families, front line staff, advocates, campaigners, managers Case records and archives Mobile Interviews and Map Making were developed during the research 息 Ledger, Thorp & Shufflebotham(2013)
  • 8. How Mobile interviews came about We found that walking or driving together in the areas where people had grown up made it much easier to share information about important people and places We called these mobile interviews. Altogether we did 14 mobile interviews 息 Ledger, Thorp & Shufflebotham(2013)
  • 9. Sues Film 息 Ledger, Thorp & Shufflebotham(2013)
  • 10. Driving, walking and taking photos My old front door 息 Ledger, Thorp & Shufflebotham(2013)
  • 11. How Life Journey maps came about: Lennies Story Lennie was one of the first people to record his story He had photographs of the house where he used to live with his family He wanted to show staff where he had lived Staff couldnt understand Lennie or recognise the streets in the photographs-they didnt live in the area. They did not know Lennies history To explain we put Lennies photos on a large A-Z Map Lennie could follow the photos -Staff were able to understand the locations The life journey maps were developed to help people keep and share their stories 息 Ledger, Thorp & Shufflebotham(2013)
  • 12. Making the life journey maps Some people chose family photographs to represent a part of their life story People also used photographs taken during mobile interviews Chosen images were then superimposed on maps People used multi media to select images for their individual maps 息 Ledger, Thorp & Shufflebotham(2013)
  • 13. 息 Ledger, Thorp & Shufflebotham(2013)
  • 14. Evaluation of the maps by people with learning disabilities Its good to have everything in one place and in the right order The maps helped me talk about the moves Ive had We have all lost parts of our past. Its good to choose my own photos The map helped me to tell people about myself and my family 息 Ledger, Thorp & Shufflebotham(2013)
  • 15. Using the maps 息 Ledger, Thorp & Shufflebotham(2013)
  • 16. Reflections: what went well The maps and mobile interviews, supported people to own and share their life stories Ideas developed with people with high support needs benefitted everyone Openness to the development of new tools and ways of working seeing what works well different people Being flexible enough to change if original method doesnt work Remembering that everyone is an expert in terms of their own lived experience 息 Ledger, Thorp & Shufflebotham(2013)
  • 17. Barriers to Inclusion Access . Time pressure Fear of failure Worry about risk and harm Resources Researcher skills BUT EVERYONE HAS A STORY TO TELL... or as Robert said - You guys story makes you who you are today 息 Ledger, Thorp & Shufflebotham(2013)
  • 18. Thank you very much Questions