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Patient-generated data

        Alexandra Carmichael
   IFTF Health Horizons Conference
               July 2009
I track myself every day



 Chronic pain symptoms, supplements, mood, sex life
 Genetics research and bioinformatics background
 WebMD and DailyStrength, no patient data sites!
Patient-generated data
Patient-generated data
Patient-generated data
Patient-generated data
Culture of participation


                             Started with 3
                              conditions, now 300

Data growth 25% per month
                             100+ measures tracked:
                              calories to chronic pain
                             Medium-term: genomics,
                              streaming biometrics
What this means for
the future of health

        Self-organized clinical trials -
         lithium trial
        Social Data Network - private
         individual, open aggregate
        Personalized medicine - which
         treatment will work for my
         symptoms?
Find me online



     alexandra@curetogether.com
     curetogether.com/blog
     @accarmichael on Twitter

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Patient-generated data

  • 1. Patient-generated data Alexandra Carmichael IFTF Health Horizons Conference July 2009
  • 2. I track myself every day Chronic pain symptoms, supplements, mood, sex life Genetics research and bioinformatics background WebMD and DailyStrength, no patient data sites!
  • 7. Culture of participation Started with 3 conditions, now 300 Data growth 25% per month 100+ measures tracked: calories to chronic pain Medium-term: genomics, streaming biometrics
  • 8. What this means for the future of health Self-organized clinical trials - lithium trial Social Data Network - private individual, open aggregate Personalized medicine - which treatment will work for my symptoms?
  • 9. Find me online alexandra@curetogether.com curetogether.com/blog @accarmichael on Twitter