This document provides guidance on pursuing meaningful design through evenings and weekends. It discusses choosing a meaningful adventure by focusing on systems thinking, visionary work, hacking, and leadership. An example is provided of a mobile video platform called TheraWe that aims to improve home therapy for children with disabilities by bridging learning between sessions. The document outlines growing the design through finding a team, speaking multiple languages, and sustaining models. It emphasizes starting as a hobby and weekend project, inspiring others, and enjoying the journey of scaling meaningful work.
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Quest for Meaningful Design - Inside Your Company or Spare Time
1. Quest for Meaningful Design
Practitioners Guide to Making Meaningful Design at Scale with
Your Evenings, Weekends, Network, and Beyond
Illustration Credits: Zed Labs
2. WHO AM I?
Im Kirby.
Product Management and Design Leader.
Changing B2B Invoicing from Drama to Delight with MSTS Team.
Lover of Post-Its, Workshops, and Tight Agendas.
Passionate about meaningful design, my family, and families with special needs
3. Rethinks the status quo.
Unlocks opportunities for those with challenges, that cannot unlock
them alone.
Not driven by profit, but also self-sustains.
Happens because of individuals, forming groups, making movements.
Meaningful Design
12. PROBLEMS IN HOME THERAPY
Therapists
Parents
Extra Time Blind Spots Communication Siloed
Fear
of losing information
by storing paper notes
Time
spent teaching
other caregivers
Anxiety
from remembering
detailed instructions
spent writing
paper notes
during in-home
treatment
is limited between
team members
treatment plans
between therapists
Therapists conduct around 20-30 sessions a week per therapist, and 3-5 hours on parent notes.
Parents will work with at least three therapy centers before age five.Of children with autism, Down
Syndrome, or other IDD
Behavioral, Occupational,
Physical, Speech
13. ITERATING TO THE SOLUTION
This would definitely be helpful, there is a lack of communication
in the whole process.
Hannah, son with general developmental disabilities
Some of therapists do record in anyway, even if it may be against the
rules"
I used to reference the binder daily. Anything
that could free us from those binders, would be
amazing.
Simone, daughter with autism
This would be such a great tool,
especially for the therapist, as family
meetings are hard to schedule.
Sometimes it feels like you are waiting
and waiting for quarterly meetings to
train families and at that point they are
in "information overload."
Kat, Child Rehabilitation
Cognition/Swallowing Therapist
This would help a lot with parent training,
you have to do it, this would help it keep
going... I know I have been talking with
these parents and training them on these
certain items.
Barb, ABA Therapist
We send home notes at the end of the
and the parents have a hard time
visualizing what we do during the
day - Karen, ABA Therapist
With the purpose to share the data of the session. We
have grandparents that do pick up, but when the
information is relayed there is information lost - this
record provides no confusion. Kelsey, ABA Therapist
14. TOTAL MARKET
$15K
Estimated U.S annual cost for families with
children with disabilities under 5.
Estimated number of children under 5
with a developmental disability1&2
Estimated average annual cost per
family with children with disabilities3
Annual Spend Domestic Users Annual Market Size
$46
Billion
3.1
Million
1.Pew Research Institute, Internet and Technology Fact Sheet, 2018
2.US Census Bureau, Population Estimates, 2017.
3.Princeton School of Public Policy, Economic Costs of a Childhood Disability, 2012.
15. TheraWe is a HIPAA compliant,
mobile video platform to bridge the
learning gap between therapy
session and the home.
We create more effective therapy
training and information sharing.
OUR SOLUTION
Instant Videos Searchable Archive Network SharingTwo-Way Messaging
16. Question:
Could you have a meaning adventure?
What are you passionate about?
What Why do you share with others?
Guide Stop 1
27. ADVISORS
Sara Weir
President and CEO
National Down Syndrome Society
Amy Allison
Executive Director, Down Syndrome
Guild of Kansas City
Jacob Butz, J.D.
Healthcare Insurance Consultant
Rene Jamison, Ph.D.
Clinical Psychologist, Pediatric Health,
KU Medical Center
Claudia Dozier, Ph.D.
Professor of Child Behavioral Science,
Kansas University
Supervisor Little Steps Early Intervention Program
29. Distribution
Target Large therapy centers to reach max
amount of parents
Network effect as parents move onto new
therapy centers in their child's treatment
GO TO MARKET STRATEGY: THREE STEPS
Awareness
Step 1: Therapy Centers
Step 2: Parents
Step 3: Advocates
Partner with national and local advocacy
groups to gain endorsement and develop
customer pipeline
Market via social, industry publications/digital and
parent and therapist conferences
31. Principle 4: Find Your Leadership.
This is your hobby.
This is your weekend.
Inspire when times are down.
This is our adventure.
Guide Stop 4
33. Principle 4: Find Your Leadership.
This is your hobby.
This is your weekend.
Inspire when times are down.
This is our adventure.
Guide Stop 4
34. Get Started.
Check your DNA.
Make design your hobby.
Choose your adventure.
Hack the future.
Find the courage to scale it.
Find your team.
Enjoy the journey.
#2: Design Presentation: the quest for meaningful design
Do you have the DNA?
Choose your adventure - TheraWe
Hack the future
Find your team and speak their language of why
Grow to maximum meaningfulness
Get started - make design your hobby, choose your adventure, hack the future// maybe unlock meaningful design at scale
Speak to the heart the tech the MBA the SME speak money
Designers:
- Systems thinkers + Hackers (challenge authority) + Leaders (inspire a shared vision)
Story of
Reality of what happens after the deck - nights weekends, putting yourself out there, design a company
Challenge - make your passion your hobby, make change your hobby, make courage, Explore design leadership in your community
Make a team: Believe what you believe
... make the filter to say
Design your life - how can you design for good?
Passionate about design
Checklist for meaningful design: you, team, will, partners
Design, in the execution (value proposition tested, will it stand with the masses)
We focus on you succeeding
Will not try something until someone tries it first - 34%
Success = people get your why, money, people, market conditions
Most dangerous designers speak all languages
Visionary, hacker, leader
Join Us
your idea gets acquired, owned, grows on its own
#4: Rethinks the status quo to unlocks opportunities for a group with challenges, that cannot unlock itself.
Not driven by profit, but self-sustaining.
Happens because of the Meaningful Design DNA.
#5:
Systems thinkers
Visionary: ability to see things differently
Hackers: ability to challenge authority
Leaders (inspire a shared vision)
Do you have the DNA?
#6:
Systems thinkers
Visionary: ability to see things differently
Hackers: ability to challenge authority
Leaders (inspire a shared vision)
#7: In Meaningful Design, you have to choose it, or at least be open to
You can spend your time on hobbies, maybe working on your other skills, going to concerts, BUT you have to CHOOSE Unlocking opportunities for those with challenges, that cannot unlock them alone.
I bet most people think this happens by accident, but most people that end of here were already looking to make a difference bigger than themselves.
I choosing my own adventure, it was niece and nephew and curiosity.
#9:
Systems thinkers
Visionary: ability to see things differently
Hackers: ability to challenge authority
Leaders (inspire a shared vision)
Do you have the DNA?
#10: For parents of children with developmental disabilities like autism and Down Syndrome. They need to teach their children the basic functions how to live - swallow, speak, how to move. This is the reality for my sister Lauren and my niece Evelyn here.
Worked with therapists to get specialized plans on child development, and instructions on what to reinforce in the home to get critical growth for the child.
BUT these plans can be hard to learn, re-create, or communicate to others.
This new life was overwhelming and a firehouse of information always asking.
IN AMERICA, 1 AND 6 CHILDREN have a developmental disability. Home therapy does not need to be this hard.
Pain points: multiple therapist, firehose of new information. Trouble remembering, communicating to her husband, and then keeping records.
In the process, she was overwhelmed and felt ineffective. 1 and 6 families in the US today, will have child with a developmental delay.
#11: Results
Parents JTBD:
I need to search for previous notes
I want to communicate X with my therapists and show videos from home
Can I get IEP or milestone updates?
Hub and spoke
Therapists:
Challenge of getting one video at a time b/c the child will not participate - usability
I want to show Tips and have them more present
HIPAA compliant is very important to me lets show the Release Process
#18:
Systems thinkers
Visionary: ability to see things differently
Hackers: ability to challenge authority
Leaders (inspire a shared vision)
Do you have the DNA?
#31:
Systems thinkers
Visionary: ability to see things differently
Hackers: ability to challenge authority
Leaders (inspire a shared vision)
Do you have the DNA?