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Smart Storytelling to enhance engagement in noncommunicable disease patients

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Paulina Dur叩n
Paulina Dur叩n

A presentation about the concept and structure behind my thesis work. This includes the usage of interactive stories to help chronic disease patients become more conscious about their illness care

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Noncommunicable Diseases Soap operas (Telenovelas) Engagement Autonomy Eudaimonic Well-being Interactive Fiction 3
Noncommunicable Disease Non-contagious, long-lasting and degenerative 1 1 Noncommunicable diseases. World Health Organization: Media Center.(January 2015). Retrieved from http://www.who.int/mediacentre/factsheets/fs355/en/ 2 World Health Organization. (2014). Global status report on noncommunicable diseases 2014. Switzerland. Sources % Of deaths worldwide 2 68 ardiovascular iabetes Chronic respiratory diseases Accounting for most of the deaths ancer DLow- and middle-income countries 4
Noncommunicable Disease WHOs Global Action Plan for the prevention & control of noncommunicable diseases 2013-2020 3 9 targets 25 indicators Behavior risks 3. World Health Organization (2013) Global action plan for the prevention and control of noncommunicable diseases. Appendix 2: comprehensive global monitoring framework, including 25 indicators, and a set of nine voluntary global targets for the prevention and control of noncommunicable diseases. Retrieved from http://apps.who.int/iris/bitstream/10665/94384/1/9789241506236_eng.pdf . Sources 5
Noncommunicable Disease BehaviorActions Sense of self Life- style Motiva -tions Engagement with meaning and fulfillment of potentials 4 4. Calvo, R., & Peters, D. (2014). Positive computing: Technology for well-being and human potential. MIT Press. Sources 6
5. soap opera. 2015. telenovela. 2015. In Merriam-Webster.com. Retrieved May 10, 2016, from http://www.merriam-webster.com/dictionary/soap%20opera 6. Singhal, A., & Rogers, E. M. (1988). Television soap operas for development in India1. International Communication Gazette, 41(2), 109-126. Retrieved March 9, 2016. Sources Soap operas (Telenovelas) Serial dramas characterized by tangled interpersonal situations and melodramatic or sentimental treatment 5 The Sabido model Miguel Sabido Vice President of Televisa Pro-development soap operas: melodramatic serial that is broadcast in order to entertain and convey subtly an educational theme to promote development6 SCT from Bandura 7
7. Encuesta Nacional sobre la Disponibilidad y Uso de Tecnolog鱈as en los Hogares (ENDUTIH). (2015). INEGI. Retrieved May 02, 2016, from http://www3.inegi.org.mx/sistemas/tabuladosbasicos/tabniveles.aspx?c=33734 Sources Soap operas (Telenovelas) 97.5 % Of households in Mexico, have a TV 7 Social 5 Hours of TV per Day Culture Life- stylea habit, a practice that requires some repetition. - L. Spence 8
Investigate the effects of interactive soap operas controlled by NCD patients and their measurements. How? Collect thoughts about the perception of a system that provides entertainment in exchange for medical data Evaluate engagement between patients and system in the following dimensions: social, time & narrative involvement. Goal 9
1. How is smart storytelling experienced by NCD patients? 2. Which dimensions of engagement are stimulated by smart storytelling and how? Smart storytelling to enhance engagement in treatments for non- communicable disease patients 10
Healthcare Entertainment Engagement Patient Health Engagement Scale (Graffigna & Barello) Narrative Engagement (Busselle) (De Graaf) Narrative Persuasion (PCI/PMC) Pro-Development Soap operas IoT Interactive soap operas (Jibaja et al.) Positive Computing (Calvo & Peters) 11
Interactive fiction Data visualization Autonomy 12
Just like a woman by Jeff Buckley on Eko 13
Observational Semi-structured Interviews (stories) Questionnaires Time tracking Experimental* *Depending on number of participants 2 groups Independent variable: Base of decision Dependent variable: Autonomy levels 14
10 5Participants Measure- ment Semi- structured Interview Interaction Session Sessions 15
User Experience User Experience Questionnaire (Rauschenberger et al) Autonomy Patient Health Engagement Scale (Graffigna & Barello) Engagement Net Promoter Score Narrative understanding & Emotional engagement (Busselle & Bilandzic) Time logs from interactions Still pending a scale to measure only autonomy / desire to decide 16
Mexican scene: Diabetes Entertainment Interactive stories responding to measurements Chreune 4. Brown, T. (2008). Design thinking. Harvard business review, 86(6), 84-92. Sources Design thinking 17
Storyboarding 18
Twine Open-source tool for telling interactive, nonlinear stories. Chreune Empire American drama that follows the struggles of a family involved in the music industry. Why? Ratings: 87% (Rotten Tomatoes), 7.9/10 (IMDB) Content available on Youtube Not aired on open TV in Mexico 19
Normal flow Part dependent on measurement 20
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Risk Management Story not interesting enough Low identification with characters (cultural) Dropout of participants Technical issues 22
Scope of research -> Stick to it Measuring psychological aspects is not easy (but still enlightening) Getting in touch with researchers = Fresh information Writing too much, too often, was dangerous 23
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Smart Storytelling to enhance engagement in noncommunicable disease patients

  • 1. 1
  • 2. 2
  • 4. Noncommunicable Disease Non-contagious, long-lasting and degenerative 1 1 Noncommunicable diseases. World Health Organization: Media Center.(January 2015). Retrieved from http://www.who.int/mediacentre/factsheets/fs355/en/ 2 World Health Organization. (2014). Global status report on noncommunicable diseases 2014. Switzerland. Sources % Of deaths worldwide 2 68 ardiovascular iabetes Chronic respiratory diseases Accounting for most of the deaths ancer DLow- and middle-income countries 4
  • 5. Noncommunicable Disease WHOs Global Action Plan for the prevention & control of noncommunicable diseases 2013-2020 3 9 targets 25 indicators Behavior risks 3. World Health Organization (2013) Global action plan for the prevention and control of noncommunicable diseases. Appendix 2: comprehensive global monitoring framework, including 25 indicators, and a set of nine voluntary global targets for the prevention and control of noncommunicable diseases. Retrieved from http://apps.who.int/iris/bitstream/10665/94384/1/9789241506236_eng.pdf . Sources 5
  • 6. Noncommunicable Disease BehaviorActions Sense of self Life- style Motiva -tions Engagement with meaning and fulfillment of potentials 4 4. Calvo, R., & Peters, D. (2014). Positive computing: Technology for well-being and human potential. MIT Press. Sources 6
  • 7. 5. soap opera. 2015. telenovela. 2015. In Merriam-Webster.com. Retrieved May 10, 2016, from http://www.merriam-webster.com/dictionary/soap%20opera 6. Singhal, A., & Rogers, E. M. (1988). Television soap operas for development in India1. International Communication Gazette, 41(2), 109-126. Retrieved March 9, 2016. Sources Soap operas (Telenovelas) Serial dramas characterized by tangled interpersonal situations and melodramatic or sentimental treatment 5 The Sabido model Miguel Sabido Vice President of Televisa Pro-development soap operas: melodramatic serial that is broadcast in order to entertain and convey subtly an educational theme to promote development6 SCT from Bandura 7
  • 8. 7. Encuesta Nacional sobre la Disponibilidad y Uso de Tecnolog鱈as en los Hogares (ENDUTIH). (2015). INEGI. Retrieved May 02, 2016, from http://www3.inegi.org.mx/sistemas/tabuladosbasicos/tabniveles.aspx?c=33734 Sources Soap operas (Telenovelas) 97.5 % Of households in Mexico, have a TV 7 Social 5 Hours of TV per Day Culture Life- stylea habit, a practice that requires some repetition. - L. Spence 8
  • 9. Investigate the effects of interactive soap operas controlled by NCD patients and their measurements. How? Collect thoughts about the perception of a system that provides entertainment in exchange for medical data Evaluate engagement between patients and system in the following dimensions: social, time & narrative involvement. Goal 9
  • 10. 1. How is smart storytelling experienced by NCD patients? 2. Which dimensions of engagement are stimulated by smart storytelling and how? Smart storytelling to enhance engagement in treatments for non- communicable disease patients 10
  • 11. Healthcare Entertainment Engagement Patient Health Engagement Scale (Graffigna & Barello) Narrative Engagement (Busselle) (De Graaf) Narrative Persuasion (PCI/PMC) Pro-Development Soap operas IoT Interactive soap operas (Jibaja et al.) Positive Computing (Calvo & Peters) 11
  • 13. Just like a woman by Jeff Buckley on Eko 13
  • 14. Observational Semi-structured Interviews (stories) Questionnaires Time tracking Experimental* *Depending on number of participants 2 groups Independent variable: Base of decision Dependent variable: Autonomy levels 14
  • 16. User Experience User Experience Questionnaire (Rauschenberger et al) Autonomy Patient Health Engagement Scale (Graffigna & Barello) Engagement Net Promoter Score Narrative understanding & Emotional engagement (Busselle & Bilandzic) Time logs from interactions Still pending a scale to measure only autonomy / desire to decide 16
  • 17. Mexican scene: Diabetes Entertainment Interactive stories responding to measurements Chreune 4. Brown, T. (2008). Design thinking. Harvard business review, 86(6), 84-92. Sources Design thinking 17
  • 19. Twine Open-source tool for telling interactive, nonlinear stories. Chreune Empire American drama that follows the struggles of a family involved in the music industry. Why? Ratings: 87% (Rotten Tomatoes), 7.9/10 (IMDB) Content available on Youtube Not aired on open TV in Mexico 19
  • 20. Normal flow Part dependent on measurement 20
  • 21. 21
  • 22. Risk Management Story not interesting enough Low identification with characters (cultural) Dropout of participants Technical issues 22
  • 23. Scope of research -> Stick to it Measuring psychological aspects is not easy (but still enlightening) Getting in touch with researchers = Fresh information Writing too much, too often, was dangerous 23
  • 24. 24

Editor's Notes

  • #8: SCT: Social Cognitive Theory People learn from role models whose behavior they wish to emulate
  • #9: SCT: Social Cognitive Theory People learn from role models they wish to emulate
  • #12: Population Communications International we are nowPCI MediaImpact PMC(Penske Media Corporation)
  • #13: Bolu