Self-tracking is rapidly moving mainstream. This abbreviated presentation is an update of a version posted here last year, and was prepared for health & fitness professionals. More info & links to resources are available at: http://www.caroltorgan.com/track-share-compare/.
This presentation includes 2 videos that illustrate high- and low- tech self-tracking. The 2nd video (at the end) shows the power of self-tracking to provide a narrative of part of a person's life. Enjoy, and I welcome feedback! - Carol
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Track, Share and Compare: The Hot Trend of Self-Tracking
1. Track, Share and Compare:
The Hot Trend of Self-Tracking
Carol E. Torgan, PhD., FACSM
Kinetics Consulting :: From lab bench to park bench
www.caroltorgan.com Twitter @ctorgan
ACSM Health & Fitness Summit, March 2012
息 Carol Torgan, Ph.D. 2012
2. Self-tracking is
Tracking your life
weight, activity, nutrition, sleep,
menstrual cycle, heart rate, mood, .
physiological, behavioral
social, environmental
Also known as:
Life-logging
Data-driven lifestyle
Personal informatics
Personal analytics
Personal monitoring
Living by numbers
Quantified self
http://quantifiedself.com Gary Wolf, Kevin Kelly
息 Carol Torgan, Ph.D. 2012
3. The Economist, Mar 3rd 2012 print edition
http://www.economist.com/node/21548493
息 Carol Torgan, Ph.D. 2012
4. O, The Oprah Magazine, December 2011
息 Carol Torgan, Ph.D. 2012
5. Who is tracking
Patients Professionals
Acute and chronic health conditions Athletes
Asthma Astronauts
Cancer Soldiers
Diabetes Firefighters
Mental health Scientists
息 Carol Torgan, Ph.D. 2012
6. Who is self-tracking
27% of internet users, or 20% of adults, have tracked their weight, diet, exercise
routine or some other health indicators or symptoms online:
15% of U.S. internet users have tracked their weight, diet, or exercise routine
online
Women internet users more likely than male users to do these activities
Internet users who experienced a significant recent health change more likely
to track (gain/lost weight, quit smoking, pregnancy)
The Social Life of Health Information, Susannah Fox, Pew Internet, May 2011 www.pewinternet.org
息 Carol Torgan, Ph.D. 2012
7. Patients Professionals
Event-driven trackers
息 Carol Torgan, Ph.D. 2012
9. For many self-trackers, the goal is
unknown.
Although they may take up tracking with
a specific question in mind, they continue
because they believe their numbers hold
secrets that they cant afford to
ignore, including answers to questions
they have not yet thought to ask.
Gary Wolf, The Data-Driven Life,
The New York Times, April 26, 2010
息 Carol Torgan, Ph.D. 2012
10. How we track
Paper and pencil
How clothes fit
Apps
Gadgets & sensors
Images
息 Carol Torgan, Ph.D. 2012
13. Adults who have downloaded an app to a cell phone or tablet
29% downloaded a health app = 11% of all adult cell phone users
Similar to Sept 2010 data (no increase over the last year)
Half of adult cell phone owners have apps on their phones, Kristen Purcell, Pew Internet, Nov, 2011
www.pewinternet.org 息 Carol Torgan, Ph.D. 2012
20. Wearable sensors
Under Armour / Zephyr E39 biometric
compression shirt
Removable electronic monitor (bug)
Heart rate, breathing rate
Skin surface temperature
triaxial acceleration
Adidas adizero f50
powered by miCoach
Performance metrics:
speed, max speed, sprint number
distance, steps & stride rates
息 Carol Torgan, Ph.D. 2012
21. ProeTEX
T-shirt
heart & breathing rate, body temperature
blood oxygen saturation
Jacket
triaxial accelerometers (collar, wrist)
carbon oxide sensor (lapel area, near mouth)
external temp sensor, heat flux sensor
visual & acoustic alarms
Boots
toxic gas concentrations (carbon dioxide)
[at the request of the users]
foot contact with ground
Magenes G, et al. Conf Proc IEEE Eng Med Biol Soc. 2010:3594-7.
www.proetex.org/
息 Carol Torgan, Ph.D. 2012
22. MagIC (Maglietta Interattiva Computerizzata)
Vest
embedded sensors made of
conductive fibers
heart rate, breathing rate
triaxial accelerometer
washable, front or side opening
Mount Everest climbers
telemonitoring
Congestive heart failure patients discharged from the hospital
wore in homes few minutes each day for a month
data viewed remotely by cardiologist
Patients felt safely supervised and requested to continue the monitoring period!
Meriggi, P. , et al. IEEE Trans Inf Technol Biomed. 2010 May;14(3):711-722.
息 Carol Torgan, Ph.D. 2012
23. Sensors on your skin: patches
Zio
cardiac monitoring (up to 14 days)
arrhythmias
Metria wearable sensor technology
disposable patch, worn up to 7 days on
back of arm
heart and breathing rates, steps
sleep duration, activity levels
息 Carol Torgan, Ph.D. 2012
24. Ingestible core body thermometer pill
Partnership
Johns Hopkins University Applied Physics Lab
NASA / Goddard Space Flight Center
Pill in system 18 to 30 hours
1988 Commercially available
(research, university, military)
1998 John Glenn used for medical experiments
on Space Shuttle Discovery
NASA Spinoff www.sti.nasa.gov/tto/Spinoff2006/hm_1.html
息 Carol Torgan, Ph.D. 2012
25. Heart Failure: CardioMEMS
6 million heart failure patients in U.S.
> 1 million hospitalizations each year
$39 billion yearly direct cost of care
Heart functions poorly, fluid builds-up
Traditionally measure body weight
Miniature wireless sensor
MEMS = microelectromechanical system
Permanently implant in pulmonary artery
Transmits real-time pressure data
Patients take daily readings
Send to doctor (handheld or computer)
Doctor modify meds = prevent hospitalization
39% drop in hospitalizations in treated patients, shorter stays
WT Abraham, et al, The Lancet, 377:658-666, 2011
息 Carol Torgan, Ph.D. 2012
26. Visual tracking
Weight loss on Flickr
Photos courtesy of Flickr, clockwise L to R: uneduex, 157/365; Christi Nielsen, Diet; bark, 40+290 Notch;
Vernon_White, Weight_Loss_Montage_2009-03-04_side
息 Carol Torgan, Ph.D. 2012
30. 1 in 4 internet users living with chronic conditions has looked
online for someone with similar health concerns.
www.patientslikeme.com
Peer-to-peer Healthcare, Pew Internet, Feb 2011 www.pewinternet.org/Reports/2011/P2PHealthcare.aspx
息 Carol Torgan, Ph.D. 2012
31. Bipolar Managed Best Without Drugs: 227 Patients Report
www.curetogether.com, data from Feb 15, 2012 by Alexandra Carmichael
息 Carol Torgan, Ph.D. 2012
33. Track, share, compare, publish: Data donorship
Study of patients with amyotrophic lateral sclerosis (ALS)
who tried lithium carbonate treatment off-label through their physicians
http://www.nature.com/nbt/journal/v29/n5/abs/nbt.1837.html
息 Carol Torgan, Ph.D. 2012
34. Track, share, compare*, care
*N=1
Case Study
Personalized Medicine
Athlete Biological Passport
The fundamental principle of the Athlete
Biological Passport is based on the monitoring
of an athletes biological variables over time to
facilitate indirect detection of doping on a
longitudinal basis, rather than on the traditional
direct detection of doping. WADA
World Anti-Doping Agency (WADA)
http://www.wada-ama.org/en/Science-Medicine/Athlete-Biological-Passport/
息 Carol Torgan, Ph.D. 2012
35. Issues
Cost
Ease of use
Accuracy, reproducibility
Tissue compatibility, safety
Range, response time
Clinically relevant information
Literacy, numeracy
Privacy
Security
息 Carol Torgan, Ph.D. 2012
36. What can be tracked vs.
What should be tracked
PricewaterhouseCoopers, Healthcare unwired, Sept 2010
息 Carol Torgan, Ph.D. 2012
38. Accuracy
Sensors are like real estate: Location matters!
Jawbone UP gives me 2,025 steps for 20 mins of
drumming to REM and Smash Pumpkins.
yfrog.com/mgrzudp @dvansickle, Twitter
息 Carol Torgan, Ph.D. 2012
39. ???
Data visualization
Cause and effect vs. correlational
False positives / false negatives
Signal vs. noise
息 Carol Torgan, Ph.D. 2012
40. Health Literacy
the degree to which a person can obtain, process, and
understand basic health information and services needed to
make appropriate health decisions.
Nearly 9 out of 10 adults have difficulty using everyday
health information that is available in health care
facilities, retail outlets, media, and communities.
Innovations in Health Literacy - Workshop Summary
March 10, 2011 Institute of Medicine Report
www.iom.edu/Reports/2011/Innovations-in-Health-Literacy.aspx
息 Carol Torgan, Ph.D. 2012
41. Health Numeracy
In general, I feel uncomfortable with health information
that has a lot of numbers and statistics.
54% strongly or somewhat agree
44% strongly or somewhat disagree
In general, I depend on numbers and statistics to help me
make decisions about my health.
57% strongly or somewhat agree
42% strongly or somewhat disagree
Health Information National Trends Survey (HINTS), 2007
http://hints.cancer.gov/
息 Carol Torgan, Ph.D. 2012
44. Opportunities
When asked about the last time they had
a health issue,
70% of adults in the U.S. say they
received information, care, or support
from a health professional.
Peer-to-Peer Healthcare, Susannah Fox, Pew Internet, Feb 2011
www.pewinternet.org/Reports/2011/P2PHealthcare.aspx
息 Carol Torgan, Ph.D. 2012
45. Kids, Tweens, Teens
Gadget savvy
Health interests
Community
息 Carol Torgan, Ph.D. 2012
46. Baby Boomers
~78 million baby boomers
~56% have high willingness to use in-home health monitoring devices
in tandem with care from their primary physician
Boomers want to shape the technology they use,
unlike younger generations who allow their lives to be shaped by it.
Michael Rogers, Practical Futurist, in MIT Enterprise Forum Northwest Report
息 Carol Torgan, Ph.D. 2011
50. The future of sensors
Measure compressive stresses in spine
Monitor blood for medication concentrations
Knee implants, stents,
Monitor our Microbiome
Microbial cells : human cells = 10:1
(10-100 trillion microbes in our intestine)
Personalized
DIY mix and match your own sensors
Track multiple conditions (not siloed)
Bottom photo: John Rodgers, Science, Vol 333 no. 6044 pp. 838-843, 2011
www.sciencemag.org/content/333/6044/838 息 Carol Torgan, Ph.D. 2012
51. What used to take up a building
now fits in my pocket,
and what fits in my pocket
will fit inside a blood cell in 25 years.
Ray Kurzweil, inventor and futurist
息 Carol Torgan, Ph.D. 2012
52. Carol Torgan, PhD, FACSM
Kinetics Consulting
www.caroltorgan.com
Twitter @ctorgan
List of talk resources available at:
www.caroltorgan.com/track-share-compare/
Gallery of tracking gadgets available at:
http://pinterest.com/caroltpin/wearable-tech/
息 Carol Torgan, Ph.D. 2012
Editor's Notes
#6: Driven by 2 ends of a continuumWhere innovation occursPat and profs lives may depend on the data
#26: Takes less than 10 minutes[Radiofrequency (RF) energy]
#27: uneduex, 157/365 Heeee. I have a waist now. And this girl with her newly found waistline must go to work.Christi Nielsen, Diet; Bark, 40+290 Notch So apparently all this crap about eating right and going to the gym is true! Sliding my belt in a notch. Yay me!
#37: http://www.pewtrusts.org/our_work_report_detail.aspx?id=85899373002Nearly Half of American Adults Are Smartphone Owners
#40: Patterns, comparisonsGoal: Use data to predict, prevent, treat, manage
#47: On January 1, 2011 10,000 thousand turned 65 Each day 10,000 more will turn 65 This will continue for the next 19 yearsBruce springsteen Richard Branson Madonna George Clooney Tom Cruise