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Social Participation in Health 2.0:
 Opportunities and Challenges
       University of Utah, Biomedical Informatics
                Graduate School Seminar
                      April 5, 2012




              Derek L. Hansen
            Information Technology, BYU
                 dlhansen@byu.edu
                    @shakmatt
   http://www.mendeley.com/profiles/derek-hansen/
Center for the Advanced Study
of Communities and Information

Human-Computer
Interaction Lab
A World of Social Technologies
Technology-mediated social
            participation (TMSP)




The goal is to create new architectures
for the online public spaces that energize
the population to contribute to vital
community and national priorities - IEEE
Computer, Nov. 2010
TMSP Examples
Socio-Technical Systems
   Cognitive-Technical System       Social-Technical System

How a Cockpit Remembers its Speed
Hutchins, Edwin
University of Utah Biomedical Informatics Seminar 際際滷s
University of Utah Biomedical Informatics Seminar 際際滷s
Historical note: how methodology
                 impacts findings
 WWW        Focus on Content   Focus on Search Process,
  WWW                          Usability, & Success
   WWW
    WWW
     WWW




                                    W
                                    W       W
                                    W       W
                                            W


WWW        WWW
 WWW        WWW                                 W


  WWW
                                                W


             WWW
                                W               W
                                W
                                        W


              WWW
                                W
                                        W
                                        W


               WWW
                                    W
                                    W
                                    W
Research Opportunities & Strategies
 Develop tools & methods to study
        social health data in the wild

 Examine extraordinary socio-technical systems from other
  domains & translate them to health 2.0 contexts



 Develop & test novel socio-technical interventions in field
  studies
Making sense of social data
Patterns are left behind               New Tools to explore relational data




New Methods & Visualizations for
Exploring & mining social experience
thimerosal on Twitter
Examine Extraordinary Socio-Technical
   Systems  Health 2.0 Systems
Develop & Test novel Socio-Technical
           Interventions
Computing Conferences that
        Welcome Health 2.0 Work
   ACM  CHI (Computer-Human Interaction)
   ACM  CSCW (Computer Supported Cooperative Work)
   ACM  SIGHITs International Health Informatics Symposium
   ICWSM  International Conference on Weblogs & Social Media
   IEEE SocalCom- Social Computing
Questions & Discussion




          Derek L. Hansen
         Information Technology, BYU
              dlhansen@byu.edu
                 @shakmatt
http://www.mendeley.com/profiles/derek-hansen/

More Related Content

University of Utah Biomedical Informatics Seminar 際際滷s

  • 1. Social Participation in Health 2.0: Opportunities and Challenges University of Utah, Biomedical Informatics Graduate School Seminar April 5, 2012 Derek L. Hansen Information Technology, BYU dlhansen@byu.edu @shakmatt http://www.mendeley.com/profiles/derek-hansen/
  • 2. Center for the Advanced Study of Communities and Information Human-Computer Interaction Lab
  • 3. A World of Social Technologies
  • 4. Technology-mediated social participation (TMSP) The goal is to create new architectures for the online public spaces that energize the population to contribute to vital community and national priorities - IEEE Computer, Nov. 2010
  • 6. Socio-Technical Systems Cognitive-Technical System Social-Technical System How a Cockpit Remembers its Speed Hutchins, Edwin
  • 9. Historical note: how methodology impacts findings WWW Focus on Content Focus on Search Process, WWW Usability, & Success WWW WWW WWW W W W W W W WWW WWW WWW WWW W WWW W WWW W W W W WWW W W W WWW W W W
  • 10. Research Opportunities & Strategies Develop tools & methods to study social health data in the wild Examine extraordinary socio-technical systems from other domains & translate them to health 2.0 contexts Develop & test novel socio-technical interventions in field studies
  • 11. Making sense of social data Patterns are left behind New Tools to explore relational data New Methods & Visualizations for Exploring & mining social experience
  • 13. Examine Extraordinary Socio-Technical Systems Health 2.0 Systems
  • 14. Develop & Test novel Socio-Technical Interventions
  • 15. Computing Conferences that Welcome Health 2.0 Work ACM CHI (Computer-Human Interaction) ACM CSCW (Computer Supported Cooperative Work) ACM SIGHITs International Health Informatics Symposium ICWSM International Conference on Weblogs & Social Media IEEE SocalCom- Social Computing
  • 16. Questions & Discussion Derek L. Hansen Information Technology, BYU dlhansen@byu.edu @shakmatt http://www.mendeley.com/profiles/derek-hansen/

Editor's Notes

  • #3: Introduction (family picture, Russia picture, BYU, Umich and iSchools, Maryland - 4 years, HCIL, CASCI, IGERT) Talk about iSchools
  • #4: More than 500 million active users 50% of our active users log on to Facebook in any given day Average user has 130 friends People spend over 700 billion minutes per month on Facebook
  • #5: See special issue of IEEE Computer, Nov. 2010 focused on Technology-Mediated Social Participation.
  • #7: Hutchins classic paper explores the idea of treating a cockpit as a unit of analysis from a cognitive psychology standpoint one that includes both human and technological components to perform computation and memory tasks. However, as most of cognitive psychology work, it focuses on one individual and not emergent properties on a social level. What would/does a socio-technical social system look like and how can we analyze them? Lostpedia provides one example of a socio-technical system engaged in sensemaking by the masses.
  • #9: Figure 1 (taken from IEEE Computer article titled Social Participation in Health 2.0 ( http://www.computer.org/portal/web/csdl/doi/10.1109/MC.2010.326 ). Research opportunities in developing the national health information infrastructure. Technology-mediated social participation systems have applications within the spheres of personal, clinical, and population health information (3 areas identified in the National Committee on Vital and Health Statistics (NCVHS) report on Information for Health: http://aspe.hhs.gov/sp/NHII/Documents/NHIIReport2001/ )
  • #10: Original studies conducted primarily in medical schools used approximately the following methodology (left-hand side): (1) Choose health topic, (2) select subset of webpages on topic (e.g., ones that show up highly in search engine results), (3) have experts review sites for accuracy and completeness giving each site a + or score (with inter-rater reliability reported), (4) report findings/conclusions (look how much bad content there is!) Other studies conducted more recently from an information seeking perspective (e.g., JASIST) use the following methodology (right-hand side): (1) choose health topic and create common search tasks on topic, (2) choose subset of people (e.g., adolescents, older adults), (3) systematically observe them searching (with think aloud protocol), (4) code search process, content viewed, and success of searches, (5) report findings/conclusions (people are more critical of content than we assumed, but some of them sure dont know how to create good search terms or use browsers effectively) See http://www.jmir.org/2003/4/e25/ for an example of the 2 nd type focused on adolescents. For one focused on older adults see http://dl.acm.org/citation.cfm?id=2132176.2132220
  • #12: Our goal is to democratize the analysis of social network analysis. How can this be applied to healthcare? Identify thought leaders, companies/organizations, cliques/clusters of users, misinformation campaigns, impact of direct-to-consumer marketing Identify people at risk of certain behaviors that have been shown to spread through social networks (e.g., alcoholism, obesity)
  • #14: Alternate Reality Games (ARGs) such as World Without Oil and Superstruct and The Lost Experience provide new opportunities to see how large groups of people perform collaborative sensemaking using social media tools. There are exciting opportunities to apply similar strategies to test large-scale simulations (e.g., disease outbreaks) and other collaborative activities (crowdsourcing scientific discovery).