Venture Capital World Summit 2015 Alan Thomas
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The document discusses ataxia, a lack of coordination and balance. It notes that ataxia affects around 350 million people worldwide, with around 3.5 million people affected in the UK. The organization Atacsia a Fi - Ataxia and Me was established by patients for patients to bring order to the lack of coordination caused by ataxia. It utilizes the internet to share information and good practices. The organization is based in Wales and encompasses both ataxia and related rare conditions.
Venture Capital World Summit 2015 Alan Thomas
- 1. Atacsia a Fi - Ataxia and Me #VCWS15 1
- 2. Atacsia a Fi - Ataxia and Me #VCWS15 2 Ataxia means ‘lack of order’ Coordination Speechbalance
- 3. Atacsia a Fi - Ataxia and Me #VCWS15 3 Ataxia means ‘lack of order’ Coordination Speechbalance My Mission is to bring back the Order to the “Lack of Order”
- 4. Atacsia a Fi - Ataxia and Me #VCWS15 4
- 5. Atacsia a Fi - Ataxia and Me #VCWS15 5
- 6. Atacsia a Fi - Ataxia and Me #VCWS15 6 350 million 6000 - 8000 350 million 6% 3.5 million 狠狠撸 provided by Findacure
- 7. “Your most unhappy customers are your greatest source of learning.” Bill Gates (Microsoft) Atacsia a Fi - Ataxia and Me #VCWS15 7
- 8. The Patient Is the Expert In their own Condition Atacsia a Fi - Ataxia and Me #VCWS15 8
- 9. Atacsia a Fi - Ataxia and Me Has been established by Patients for Patients Atacsia a Fi - Ataxia and Me #VCWS15 9
- 10. Atacsia a Fi - Ataxia and Me Based in Wales Utilising the power of the internet Sharing good practice and information Atacsia a Fi - Ataxia and Me #VCWS15 10
- 11. Atacsia a Fi - Ataxia and Me #VCWS15 11 Atacsia a Fi - Ataxia and Me
- 12. Atacsia a Fi - Ataxia and Me Unique in encompassing Ataxia, associated rare conditions and movement disorders Atacsia a Fi - Ataxia and Me #VCWS15 12
- 13. Atacsia a Fi - Ataxia and Me Unique in being keen to promote Co- production, Collaboration. Plus Innovative ideas Atacsia a Fi - Ataxia and Me #VCWS15 13
- 14. Atacsia a Fi - Ataxia and Me Awareness Logo Branding Website Database, of patients Atacsia a Fi - Ataxia and Me #VCWS15 14
- 15. Atacsia a Fi - Ataxia and Me Thank You / Diolch Alan Thomas onamission.thomas@btinternet.com @alanROYGBIV Atacsia a Fi - Ataxia and Me #VCWS15 15
Editor's Notes
- Thank You, for this Amazing oppertunity
- I am part of those stats But I am a person who happens to have a condition called ATAXIA ! 'Ataxia' means ‘lack of order’. People with ataxia have problems with Cordination Balance and speech communication is something that is very important to us all
- My Mission is to bring back the Order to the “Lack of Order” Using the Internet has made this possible – giving ME “the patient” a voice
- Patient Crossing Borders to Customer maybe seen as “Going over to the Dark side”
- Crossing Borders I see it as “seeing the Light” And opening Avenues to exciting oppertunities
- Anyone know these stats 6000 – 8000 Rarediseases That’s 6% of population 3.5 million in UK and 350 million in the World will be affected by a raredisease I am one of those stats Thats ALOT of patients or “potential customers” -
- “Your most unhappy customers are your greatest source of learning.” –?Bill Gates A true quote that applies to ALL organisations – BIG and small.
- 8 A TRUE Fact The Patient Is the Expert In their own Condition A fantastic source of REAL Life health information, this knowledge can be used by all Health related organisations.
- Atacsia a Fi - Ataxia and Me Has been established by Patients for Patients It was put in place by numerous requests within the Health community.
- Atacsia a Fi - Ataxia and Me Based in Wales - Will be Utilising the power of the internet connecting to the World Sharing good practice and information
- Interacting via Social Media As well as face to face communication
- Unique > in encompassing Ataxia, associated rare conditions and movement disorders
- Atacsia a Fi – Ataxia and Me Unique in being keen to promote Co-production, Collaboration. Plus Innovative ideas
- Future developments include Raising Awareness A Positive Logo An Eye catching and proactive Branding Plus a Website that is uplifting while sharing information Database of pateints that will be valueable the health industry Plus alot more ....
- Thank You / Diolch Alan Thomas Onamission.thomas@btinternet.com @alanROYGBIV