Personal Information
Organization / Workplace
Bar Harbor, Maine
About
Vascular, Ehlers-Danlos w/ three splenic artery aneurysms, an enlarged aorta, & Postural Orthostatic Tachycardia Syndrome.
Save an endangered species; Protect the medical zebra!
Support Scientific Research to fight EDS
My song: I'm Alive- Kenny Chesney, Dave Matthews
Married Mom of 4 with Vascular, Ehlers-Danlos Syndrome living with three known small stable splenic artery aneurysms and an enlarged aorta, to date.
I have enrolled in every scientific study I could find connected to my disease in hopes to change the future of EDS.
Support scientific research in the fight against rare diseases but always make sure you know where your "research" money is going. Don't just take their word for i