Vascular, Ehlers-Danlos w/ three splenic artery aneurysms, an enlarged aorta, & Postural Orthostatic Tachycardia Syndrome.
Save an endangered species; Protect the medical zebra!
Support Scientific Research to fight EDS
My song: I'm Alive- Kenny Chesney, Dave Matthews
Married Mom of 4 with Vascular, Ehlers-Danlos Syndrome living with three known small stable splenic artery aneurysms and an enlarged aorta, to date.
I have enrolled in every scientific study I could find connected to my disease in hopes to change the future of EDS.
Support scientific research in the fight against rare diseases but always make sure you know where your "research" money is going. Don't just take their word for i
We’ve updated our privacy policy so that we are compliant with changing global privacy regulations and to provide you with insight into the limited ways in which we use your data.
You can read the details below. By accepting, you agree to the updated privacy policy.