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U.S. BUDGET &
APPROPRIATIONS 101
February 29, 2024
NON-COMMUNICABLE DISEASES 101
March 27, 2024
Welcome & Introductions
About GHC and the NCD Working Group
NCD Global Landscape
Questions
Fireside Chat with Patient Advocates
Closing
Agenda
Housekeeping
Eliana Monteforte
Director for Special Projects,
Global Health Council
Introductions
Katy Winckworth-Prejsnar
Co-Chair, NCD Working Group/
National Comprehensive Cancer Network
Kate Doherty
Co-Chair NCD Working Group/
Global ARCH
About Global Health Council (GHC)
$11.3 $12.9
$0.9
$1.2
$9.4
GHC is the leading member organization devoted to advancing global health
priorities by uniting advocates, implementers, policy makers and other
stakeholders.
Non-Communicable Disease (NCD) Working Group
MCH
($1235)
Malaria ($1005)
Health
Security
($670)
FP/RH
($608)
The Working Group serves as a platform where GHC members can share
knowledge, information about NCDs and coordinate advocacy e鍖orts across
organizations. The working groups current goals include:
 Educate and build awareness around NCDs among USG and other
governments
 Build awareness around the investment case for NCDs among multilateral
agencies
 Align the larger NCD community around engagement with the 2025 HLM on
NCDs
*The GHC NCD Working Group is only open to GHC members in good standing
What are NCDs?
 Noncommunicable diseases (NCDs), also known as chronic diseases, have
common features that relate to health status and health-related treatment:
 Not transmitted person to person
 Shared risk factors
 Co-exist
 Long latency
 Long lasting
 Mortality and Morbidity
 Non-health consequences
 Some types of NCDs include cardiovascular diseases (such as heart attacks and
stroke), cancers, chronic respiratory diseases (such as chronic obstructive
pulmonary disease and asthma) and diabetes.
What are NCDs? More than just the Big 4
 Alzheimers disease
 amyotrophic lateral sclerosis (ALS)
 arthritis
 attention deficit hyperactivity disorder (ADHD)
 autism spectrum disorder (ASD)
 Bells palsy
 bipolar disorder
 birth defects
 cerebral palsy
 chronic kidney disease
 chronic pain
 chronic pancreatitis
 chronic traumatic encephalopathy (CTE)
 clotting/bleeding disorders
 congenital hearing loss
 Cooleys anemia (also called beta thalassemia)
 Crohns disease
 dental caries
 depression
 Down syndrome
 eczema
 epilepsy
 fetal alcohol syndrome
 fibromyalgia
 fragile X syndrome (FXS)
 hemochromatosis
 hemophilia
 inflammatory bowel disease (IBD)
 insomnia
 jaundice in newborns
 kidney disease
 lead poisoning
 liver disease
 muscular dystrophy (MD)
 myalgic encephalomyelitis/chronic fatigue syndrome
(ME/CFS)
 myelomeningocele (a type of spina bifida)
 obesity
 periodontitis
 primary thrombocythemia
 psoriasis
 seizure disorder
 sickle cell anemia
 sleep disorders
 stress
 systematic lupus erythematosus (also called lupus)
 Sj旦gren disease
 temporomandibular joint (TMJ) disorder
 Tourette syndrome (TS)
 traumatic brain injury (TBI)
 ulcerative colitis
 vision impairment
 von Willebrand disease (VWD)
Why Focus on NCDs: The Global Burden
Why Focus on NCDs: The Global Burden Cont
 Each year NCDs take 41 million lives
 86% of those deaths occur in low and
middle-income countries
 Dual burden of infectious diseases and
NCDs
 40% of those deaths could have be
prevented
 Poor, vulnerable, and marginalized
populations are most a鍖ected by these
conditions
Investments in NCDs
Source: NCD Alliance policy brief https://ncdalliance.org/sites/default/鍖les/resource_鍖les/NCD%20Financing%20Brief_Invest%20to%20Protect_鍖nal_web_01.pdf
NCDs on the Global Health and Developmental Agenda
Fireside Chat with Patient
Advocates
Kathy Hammitt
Sj旦gren's Disease Advocate
USA
Patient Advocates
Hekla Bj旦rg
Congenital Heart Disease (CHD) Advocate
Iceland
Moses Echodu
Childhood Cancer Advocate
Uganda
Fireside Chat
What are the biggest challenges you face living with an NCD?
Fireside Chat Cont
What are the most important issues advocates/other stakeholders should address
in their work?
Questions?
Thank you!
advocacy@globalhealth.org
www.GlobalHealth.Org

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Non-Communicable Diseases (NCD) and Global Health 2024

  • 1. U.S. BUDGET & APPROPRIATIONS 101 February 29, 2024 NON-COMMUNICABLE DISEASES 101 March 27, 2024
  • 2. Welcome & Introductions About GHC and the NCD Working Group NCD Global Landscape Questions Fireside Chat with Patient Advocates Closing Agenda
  • 4. Eliana Monteforte Director for Special Projects, Global Health Council Introductions Katy Winckworth-Prejsnar Co-Chair, NCD Working Group/ National Comprehensive Cancer Network Kate Doherty Co-Chair NCD Working Group/ Global ARCH
  • 5. About Global Health Council (GHC) $11.3 $12.9 $0.9 $1.2 $9.4 GHC is the leading member organization devoted to advancing global health priorities by uniting advocates, implementers, policy makers and other stakeholders.
  • 6. Non-Communicable Disease (NCD) Working Group MCH ($1235) Malaria ($1005) Health Security ($670) FP/RH ($608) The Working Group serves as a platform where GHC members can share knowledge, information about NCDs and coordinate advocacy e鍖orts across organizations. The working groups current goals include: Educate and build awareness around NCDs among USG and other governments Build awareness around the investment case for NCDs among multilateral agencies Align the larger NCD community around engagement with the 2025 HLM on NCDs *The GHC NCD Working Group is only open to GHC members in good standing
  • 7. What are NCDs? Noncommunicable diseases (NCDs), also known as chronic diseases, have common features that relate to health status and health-related treatment: Not transmitted person to person Shared risk factors Co-exist Long latency Long lasting Mortality and Morbidity Non-health consequences Some types of NCDs include cardiovascular diseases (such as heart attacks and stroke), cancers, chronic respiratory diseases (such as chronic obstructive pulmonary disease and asthma) and diabetes.
  • 8. What are NCDs? More than just the Big 4 Alzheimers disease amyotrophic lateral sclerosis (ALS) arthritis attention deficit hyperactivity disorder (ADHD) autism spectrum disorder (ASD) Bells palsy bipolar disorder birth defects cerebral palsy chronic kidney disease chronic pain chronic pancreatitis chronic traumatic encephalopathy (CTE) clotting/bleeding disorders congenital hearing loss Cooleys anemia (also called beta thalassemia) Crohns disease dental caries depression Down syndrome eczema epilepsy fetal alcohol syndrome fibromyalgia fragile X syndrome (FXS) hemochromatosis hemophilia inflammatory bowel disease (IBD) insomnia jaundice in newborns kidney disease lead poisoning liver disease muscular dystrophy (MD) myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) myelomeningocele (a type of spina bifida) obesity periodontitis primary thrombocythemia psoriasis seizure disorder sickle cell anemia sleep disorders stress systematic lupus erythematosus (also called lupus) Sj旦gren disease temporomandibular joint (TMJ) disorder Tourette syndrome (TS) traumatic brain injury (TBI) ulcerative colitis vision impairment von Willebrand disease (VWD)
  • 9. Why Focus on NCDs: The Global Burden
  • 10. Why Focus on NCDs: The Global Burden Cont Each year NCDs take 41 million lives 86% of those deaths occur in low and middle-income countries Dual burden of infectious diseases and NCDs 40% of those deaths could have be prevented Poor, vulnerable, and marginalized populations are most a鍖ected by these conditions
  • 11. Investments in NCDs Source: NCD Alliance policy brief https://ncdalliance.org/sites/default/鍖les/resource_鍖les/NCD%20Financing%20Brief_Invest%20to%20Protect_鍖nal_web_01.pdf
  • 12. NCDs on the Global Health and Developmental Agenda
  • 13. Fireside Chat with Patient Advocates
  • 14. Kathy Hammitt Sj旦gren's Disease Advocate USA Patient Advocates Hekla Bj旦rg Congenital Heart Disease (CHD) Advocate Iceland Moses Echodu Childhood Cancer Advocate Uganda
  • 15. Fireside Chat What are the biggest challenges you face living with an NCD?
  • 16. Fireside Chat Cont What are the most important issues advocates/other stakeholders should address in their work?